• Joshwa
    • Experience with Follicular Lymphoma
    about 3 years ago
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    External radiation

    Radiation

    Difinitive Radiotherapy December 18th 2017 to January 8th 2018, roughly... Had my mask made the same day we decided to go for radia...

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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    • Joshwa
    • Experience with Follicular Lymphoma
    about 3 years ago
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    To radiate or not to radiate.... December 2017

    Decision Point

    Staging still inconclusive with so many areas of PET CT lit up several weeks after Rituxan. Drs suggested radiotherapy because they ...

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    • Joshwa
    • Experience with Follicular Lymphoma
    about 3 years ago
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    4x Rituxan

    Drug or Chemo Therapy

    October 2017 began series of 4x Rituxan infusions (once a week for four weeks). Drove myself there and back. Super sleepy from Benad...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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    • Joshwa
    • Experience with Follicular Lymphoma
    about 3 years ago
    Joshwa's Avatar

    Surgery

    Procedure or Surgery

    Second bone marrow biopsy. This time, CT guided. BTW, it sucked! But good results, sort of... Sarcoidosis confirmed, no lymphoma in ...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Joshwa
    • Experience with Follicular Lymphoma
    about 3 years ago
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    Surgery

    Procedure or Surgery

    Bone marrow biopsy. Staging purposes... PET CT lit up areas in chest and bones, including pelvis. Previously suspected pulmonary sar...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Joshwa
    • Experience with Follicular Lymphoma
    about 3 years ago
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    Surgery

    Procedure or Surgery

    Biopsy July 30th, 2017. Excision of 2 enlarged nodes measuring about 3cm each.

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Joshwa
    • Experience with Follicular Lymphoma
    about 3 years ago
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    Just Diagnosed

    Oh No

    I found a lump in my neck on June 4th, 2017. The events that followed included prednisone, bloods, a CT scan after seeing a few diff...

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    • jomak
    • Experience with Follicular Lymphoma
    about 3 years ago
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    Remission

    Celebration

    I was notified after my scans in late November 2017 that I was in FULL REMISSION...tears of joy soon followed.

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    • djholt
    • Experience with Follicular Lymphoma
    about 3 years ago
    djholt's Avatar

    to get a second opion and the biopsys I had to decide if I wanted done.

    Decision Point

    Feeling very anxious and in denial of it alll

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    • djholt
    • Experience with Follicular Lymphoma
    about 3 years ago
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    Just Diagnosed

    Oh No

    Such a overwhelming feelings of death and pain shocked out of my mind

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    • Howie40
    • Experience with B-Cell Lymphoma
    about 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    2009 - R-CHOP, 2016 - Bendamustine & Rituximab Now in remission but taking Revlamid 15mg, 21 days on, 7 days off.

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  1. about 3 years ago
    dlcmeighan's Avatar

    Cancer is back/Recurred

    Oh No

    Cancer is back and because of the infection I got after 6 months of Chemo in 2015 I can no longer have anymore chemo. So doctor sa...

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