• cem
    • Experience with High-Grade Astrocytoma (al...
    over 3 years ago
    cem's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    chemo, anti nausea, anti depressants used

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • cem
    • Experience with High-Grade Astrocytoma (al...
    over 3 years ago
    cem's Avatar

    Surgery

    Procedure or Surgery

    first surgery went well with fairly short recovery but had another tumor 6 mths later causing stroke and another surgery and then ga...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • HVG
    • Experience with Glioma
    over 3 years ago
    HVG's Avatar

    Lost loved one

    Loss

    Dad passed away from glioblastoma in April of 2016. He lived 4 years and 7 months past his initial diagnosis.

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    0 Comments
    • Suzy-q
    • Experience with Brain and Spinal Cord T...
    over 3 years ago
    Suzy-q's Avatar

    Oh No

    Seizures started again, with a couple of falls, called my Oncologist, yes let's move your Feb.2016 MRI to NOW! O.K., We get that do...

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    0 Comments
  1. over 3 years ago
    Violet_Rose's Avatar

    External radiation

    Radiation

    While the radiation appointments didn't bother him, the after effects have been hard to deal with. Of course, some of that can be du...

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    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. over 3 years ago
    Violet_Rose's Avatar

    Health insurance issue

    Oh No

    His insurance runs out in July, mine ends in May, I'll be eligible for Cobra, but I don't know if I'm allowed to add him into my Cob...

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    4 Comments
    • KimmieB
    • Experience with Brain and Spinal Cord ...
    over 3 years ago
    KimmieB's Avatar

    Relationship issues

    Oh No

    We can't seem to quit having periodic spats; they're daily.

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    0 Comments
    • slynn
    • Experience with High-Grade Astrocytoma (...
    over 3 years ago
    slynn's Avatar

    Fatigue (tiredness)

    Side Effects

    chemotherapy caused nausea and fatigue

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    0 Comments
    • slynn
    • Experience with High-Grade Astrocytoma (...
    over 3 years ago
    slynn's Avatar

    Work problems

    Oh No

    due to problems with speech and memory my husband could no longer be a teacher

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    0 Comments
    • Papa1234
    • Experience with Brain and Spinal Cord...
    almost 4 years ago
    Papa1234's Avatar

    throat and neck

    Procedure or Surgery

    In October of 2015 I was rushed to hospital and was told I had to have surgery immediately to take out tonsils so I did just to fin...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. almost 4 years ago
    MeToo15's Avatar

    Surgery

    Procedure or Surgery

    The first day of surgery, June 5th, 2007, they fused my head down to C-4 and put me into ICU on the ventilator until the next mornin...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. almost 4 years ago
    MeToo15's Avatar

    Alternative and diet

    Other Care

    I do not discuss what is working for me because so far the FDA has shut down the access to things that had been working for me. Thi...

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    0 Comments
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