1. over 4 years ago
    Augustalee's Avatar

    Biopsy on mass in my neck

    Procedure or Surgery

    Biopsy came back positive for Lymphoma

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    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  2. over 4 years ago
    Augustalee's Avatar

    Misdiagnosed

    Oh No

    Found the first lump...no one would take my insurance. Went to the ER, they drew blood and did a chest x-ray. "Oh your white cell co...

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    1 Comment
    • Outlier
    • Experience with Classic Hodgkin Disease
    over 4 years ago
    Outlier's Avatar

    Surgery

    Procedure or Surgery

    Aortic Heart Valve replaced: 12-10-14.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    2 Comments
  3. over 4 years ago
    CourtneyDoug's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Since he is participating in a clinical study, the study medication gives him severe nerve damage. With time his oncologist believes...

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    1 Comment
  4. over 4 years ago
    CourtneyDoug's Avatar

    Cancer is back/Recurred

    Oh No

    About 30 days ago we received our PET scan results and the Hodgkin's Lymphoma is back in a new area. I also have a tumor in my thyro...

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    0 Comments
  5. over 4 years ago
    CourtneyDoug's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    He is also in a clinical study, testing a different chemo medicine. It is already approved by the FDA to give to Hodgkin's patients ...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. over 4 years ago
    CourtneyDoug's Avatar

    Chemo Study

    Clinical Trial

    The name of the medicine has excaped my thoughts at the moment. He get ABVD but the D is the study medication. The success rates are...

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    0 Comments
  7. over 4 years ago
    carolk2222's Avatar

    Side Effects

    Well I now have had my heart affected by the radiation. I had to change doctors in order to find that out. My previous family doctor...

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    2 Comments
  8. over 4 years ago
    BrookeJordan's Avatar

    Nausea/Vomiting

    Side Effects

    Awful for a few days after treatment

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    0 Comments
  9. over 4 years ago
    BrookeJordan's Avatar

    Surgery

    Procedure or Surgery

    Lymph node biopsy in neck. It went fine but they sliced my throat with the breathing tube so that hurt for a few days after.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Mprude20
    • Experience with Nodular sclerosing
    over 4 years ago
    Mprude20's Avatar

    Cancer has spread/Metastasized

    Oh No

    Swollen lymph nodes in my neck. Multiple ones which caused the radiologist concern...

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    1 Comment
    • Mprude20
    • Experience with Nodular sclerosing
    over 4 years ago
    Mprude20's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Sometimes it's hard to breath and I get really cold.

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    0 Comments
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