1. 26 days ago
    caensminger's Avatar

    Constipation

    Side Effects

    I expected diarrhea. I ended up with mild constipation that also lead to a "blockage" in my GI tract. This blockage caused regurgi...

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  2. 26 days ago
    caensminger's Avatar

    Rash

    Side Effects

    Horrific rash over entire body. I never want to go through that again. Prednisone and a break from treatment where necessary. Sti...

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  3. 26 days ago
    caensminger's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started 2 mg of Mekinist per day about the same time I also started the pembroluzimab. I experienced a HORRIFIC rash over 100% of m...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 26 days ago
    caensminger's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Started Pembroluzimab/Keytruda along with Mekinist chemo at the same time. It's hard to determine which caused what side effect. M...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 26 days ago
    caensminger's Avatar

    Out of approved treatments. Couldn't get into a trial. My oncologist didn't have any options and was befuddled. Went back to UCLA to exhaust all options.

    Decision Point

    UCLA oncologist was able to clear a path towards two treatments, neither of which has much chance of helping at all. But we are try...

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  6. 26 days ago
    caensminger's Avatar

    Laser surgery

    Procedure or Surgery

    Gamma knife again. Rather easy.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  7. 26 days ago
    caensminger's Avatar

    Cancer is back/Recurred

    Oh No

    Melanoma, two tumors, found in the left side of my brain for the first time. Previous brain tumors had been on the right side only.

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  8. 26 days ago
    caensminger's Avatar

    Laser surgery

    Procedure or Surgery

    Gamma knife surgery. Fairly easy.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  9. 26 days ago
    caensminger's Avatar

    Cancer is back/Recurred

    Oh No

    Cancer is in the brain again.

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    0 Comments
  10. 26 days ago
    caensminger's Avatar

    External radiation

    Radiation

    Five weeks of radiation to the temporal area. Five days per week. This contributed heavily to the surgical wound not healing.

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  11. 26 days ago
    caensminger's Avatar

    Surgery to remove cancer that has spread

    Procedure or Surgery

    This surgery begins a really difficult period that lasts until today. The wound from this surgery didn't heal well. Infection occu...

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  12. 26 days ago
    caensminger's Avatar

    Cancer is back/Recurred

    Oh No

    The "manual" brain surgery must have left behind a few cancer cells in the muscular tissue on it's way out. Because, about a year a...

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