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Constipation
Side Effects
0 CommentsI expected diarrhea. I ended up with mild constipation that also lead to a "blockage" in my GI tract. This blockage caused regurgi...
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Rash
Side Effects
0 CommentsHorrific rash over entire body. I never want to go through that again. Prednisone and a break from treatment where necessary. Sti...
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Chemotherapy
Drug or Chemo Therapy
Started 2 mg of Mekinist per day about the same time I also started the pembroluzimab. I experienced a HORRIFIC rash over 100% of m...
0 CommentsEasy to Do: Agree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
Immunotherapy
Drug or Chemo Therapy
Started Pembroluzimab/Keytruda along with Mekinist chemo at the same time. It's hard to determine which caused what side effect. M...
0 CommentsEasy to Do: Agree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree -
Out of approved treatments. Couldn't get into a trial. My oncologist didn't have any options and was befuddled. Went back to UCLA to exhaust all options.
Decision Point
0 CommentsUCLA oncologist was able to clear a path towards two treatments, neither of which has much chance of helping at all. But we are try...
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Laser surgery
Procedure or Surgery
Gamma knife again. Rather easy.
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Strongly Agree Minimal Side Effects: Strongly Agree Minimal Impact to Daily Life: Strongly Agree -
Cancer is back/Recurred
Oh No
0 CommentsMelanoma, two tumors, found in the left side of my brain for the first time. Previous brain tumors had been on the right side only.
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Laser surgery
Procedure or Surgery
Gamma knife surgery. Fairly easy.
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Strongly Agree Minimal Side Effects: Strongly Agree Minimal Impact to Daily Life: Strongly Agree -
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External radiation
Radiation
Five weeks of radiation to the temporal area. Five days per week. This contributed heavily to the surgical wound not healing.
0 CommentsPainless Experience: Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Disagree -
Surgery to remove cancer that has spread
Procedure or Surgery
This surgery begins a really difficult period that lasts until today. The wound from this surgery didn't heal well. Infection occu...
0 CommentsWent as Expected: Disagree Minimal Recovery: Strongly Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
Cancer is back/Recurred
Oh No
0 CommentsThe "manual" brain surgery must have left behind a few cancer cells in the muscular tissue on it's way out. Because, about a year a...