• BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Low platelet counts (thrombocytopenia)

    Side Effects

    This occurs at approx. 1-week after the 2nd chemo treatment of Gemzar. I've suffered from severe nose bleeds, bringing me to the ER...

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    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Constipation

    Side Effects

    Now using Colace stool softeners, which seem to help some.....just having to get up and "go" nearly every 1/2 hour. UGH!!!

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    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Bleeding

    Side Effects

    Nose bleeds after the Gemzar chemo treatment due to low platelet counts. Had platelet infusion one time. Not sure if it's the Cisp...

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    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Fatigue (tiredness)

    Side Effects

    Extremely tired and weak - particularly in the legs as they are swollen and have been since treatment started in early-Sept., althou...

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    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Eating problems (anorexia)

    Side Effects

    Appetite stinks! I try to consume approx. 1,000 calories or more per day. Not very successful getting that many calories in. My d...

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    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Fluid in the abdomen (ascites)

    Side Effects

    Endured paracentesis procedure twice - last time (1 week ago) was brutal with stomach cramps afterwards.

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    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Pain medicine

    Drug or Chemo Therapy

    Hydrocodone/APAP 5-325, now upped to 10-325 every 4 hours as needed. I'm now taking 1 tablet every 7-9 hours!!

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Initially Cisplatin and Gemzar used for 3 cycles of chemo treatment (Day 1 in cycle - Cisplatin & Gemzar, Day 8 in cycle - Gemzar, t...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Diagnosed

    Oh No

    In Aug. 2012, after my husband prodding me, I finally went to our primary physician thinking I was developing an ulcer because of st...

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    0 Comments
    • Kelly7
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    Kelly7's Avatar

    Surgery

    Procedure or Surgery

    A tumor was removed from three vertabrae in his spine. This has been a source or pain for nearly three years. He recently had a pa...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Kelly7
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    Kelly7's Avatar

    Diagnosed

    Oh No

    Brett is my husband and he was diagnosed the day after he turned 50. Adenocarcinoma of unknown primary origin stage 4. Doctors are...

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    0 Comments
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 7 years ago
    Bellamore's Avatar

    Cancer has spread/Metastasized

    Oh No

    My latest scan shows that I have developed three new tumors. They look like little hens clustered around the mother tumore. Sigh!!!!...

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    4 Comments
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