• Kelly7
    • Experience with Bile Duct (Cholangiocar...
    over 6 years ago
    Kelly7's Avatar

    Diagnosed

    Oh No

    Brett is my husband and he was diagnosed the day after he turned 50. Adenocarcinoma of unknown primary origin stage 4. Doctors are...

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    0 Comments
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 6 years ago
    Bellamore's Avatar

    Cancer has spread/Metastasized

    Oh No

    My latest scan shows that I have developed three new tumors. They look like little hens clustered around the mother tumore. Sigh!!!!...

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    4 Comments
    • Dory
    • Experience with Bile Duct (Cholangiocarci...
    almost 7 years ago
    Dory's Avatar

    Hospitalization

    Other Care

    Was in the hospital for more then two months almost all time in intensive care, came out of the hospital to my home with the help o...

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    0 Comments
    • Dory
    • Experience with Bile Duct (Cholangiocarci...
    almost 7 years ago
    Dory's Avatar

    Procedure or Surgery

    It was a long operation pretty risky but did it's job

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • september1
    • Experience with Bile Duct (Cholangi...
    almost 7 years ago
    september1's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am given a drug before my chemo to help minimize side effects.I can't remember the name of it but gemzar and cisplatin are the ch...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    2 Comments
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    almost 7 years ago
    MaryD's Avatar

    Job

    Loss

    I did actually lose friends, cause they sometimes don't know what to say to me. Maybe cause I don't work anymore. I also lost a cou...

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    0 Comments
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    almost 7 years ago
    MaryD's Avatar

    Remission

    Celebration

    I am in remission now 4yrs and nine months. I still have pain all ove my body some days are bad, but I lerned to tolrate. I keep bus...

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    1 Comment
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    almost 7 years ago
    MaryD's Avatar

    I made a decsion to LIVE

    Decision Point

    Even though I still have side effects, I make it a point to get out of bed every morning, (and I got a rescue dog "Missy) and I walk...

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    0 Comments
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    almost 7 years ago
    MaryD's Avatar

    Chemo brain

    Side Effects

    beside the CHemo brain, horrible leg pain on the day of Chemo, and sleepness, all over body pain (still have that) ...confusion, nau...

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    0 Comments
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    almost 7 years ago
    MaryD's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The day of chemo was horrible the first night my legs hurts so much and could not sleep. Then in a few days I began to feel a little...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    almost 7 years ago
    MaryD's Avatar

    Surgery

    Procedure or Surgery

    At first I was so scared, the pain and the long incision...ugh! But gradually I began to recover ....and now in remission since 8/09

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • cldunn5
    • Experience with Bile Duct (Cholangioca...
    almost 7 years ago
    cldunn5's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had 12 weeks of Cisplatin and Gemcitabine. Side effects were managable. Toward the end I got very sick and was having awful stom...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
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