• Robin_M
    • Experience with Clear Cell, Kidney Cancer
    almost 4 years ago
    Robin_M's Avatar

    Initial diagnosis

    Oh No

    Kidney cancer diagnosed in November 1988. Told he would die within two or three months; inoperable. Then MRI showed tumor was operab...

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    • Robin_M
    • Experience with Clear Cell, Kidney Cancer
    almost 4 years ago
    Robin_M's Avatar

    Lost loved one

    Loss

    Husband died six weeks after the clinical trial failed. His quality of life remained good until the last two weeks. He died on Augus...

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    • Robin_M
    • Experience with Clear Cell, Kidney Cancer
    almost 4 years ago
    Robin_M's Avatar

    trial failed

    Decision Point

    In late June of 1998 the clinical trial failed, and we returned to Denver. Husband decided to have no further treatment.

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    • Robin_M
    • Experience with Clear Cell, Kidney Cancer
    almost 4 years ago
    Robin_M's Avatar

    cognitive difficulties due to brain radiation

    Side Effects

    A year or 18 months after brain radiation, my husband's cognitive abilities declined. He had several alarming episodes of being unab...

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    • Robin_M
    • Experience with Clear Cell, Kidney Cancer
    almost 4 years ago
    Robin_M's Avatar

    bryostatin 1 (novel drug still in testing)

    Clinical Trial

    "Commuted" from Denver to Dallas to MD Anderson in Houston to participate in small clinical trial when cancer metastasized to rib in...

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    • Robin_M
    • Experience with Clear Cell, Kidney Cancer
    almost 4 years ago
    Robin_M's Avatar

    Many "medical adventures" but no medications until clinical trial.

    Procedure or Surgery

    Watch and wait for lung mets, surgical repair for incision, brain tumor successfully resected, brain radiation. Excellent outcomes, ...

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    Went as Expected: Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Robin_M
    • Experience with Clear Cell, Kidney Cancer
    almost 4 years ago
    Robin_M's Avatar

    Cancer has spread/Metastasized

    Oh No

    Metastasis to lungs (many small spots) early in 1991.

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  1. almost 4 years ago
    dennis3522's Avatar

    Money

    Oh No

    Went in for severe back pain M R I showed cancer. Oh. No.

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  2. almost 4 years ago
    forever-autumn's Avatar

    How others treat me

    Oh No

    I am still coming to terms with my diagnosis so still upset crying and some days feel unreal. Most people have been supportive but o...

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  3. almost 4 years ago
    Maryellend's Avatar

    Finished treatment

    Celebration

    Cancer was still contained in kidney so partial nephrectomy is all i needed.

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  4. about 4 years ago
    meatcutter's Avatar

    Milestones

    so far 1 year and 5 months almost 6 months cancer free

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  5. about 4 years ago
    meatcutter's Avatar

    Breakthrough

    Celebration

    they got the tumor in one shot in 7 1/2 hours robotic surgery no treatment needed

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    1 Comment
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