• Patje
    • Experience with Chronic Lymphocytic Leuk...
    almost 6 years ago
    Patje's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Will start chemo on 9/19. Still sore around Port site & apprehensive.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Patje
    • Experience with Chronic Lymphocytic Leuk...
    almost 6 years ago
    Patje's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Had a reaction to antibiotic co-administered with Fentanil & Versed next day. Not expecting that at all.

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Patje
    • Experience with Chronic Lymphocytic Leuk...
    almost 6 years ago
    Patje's Avatar

    Oh No

    I knew something was wrong but did not suspect CA. I had just lost my older brother,and two sisters-in-law to various Cancers in[ph...

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    1 Comment
    • Cannen
    • Experience with Chronic Lymphocytic Leu...
    almost 6 years ago
    Cannen's Avatar

    Oh No

    I found out I had cancer by taking a blood test and finding out my white blood cells was at 20k. Last week at Stanford they tested m...

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    1 Comment
    • jer411
    • Experience with Chronic Lymphocytic Leu...
    almost 6 years ago
    jer411's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had my frist treatment,two days after i was in ICU for one and a week and a half and a half week in a room.I had a bad reaction to...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • bhawks40
    • Experience with Chronic Lymphocytic L...
    almost 6 years ago
    bhawks40's Avatar

    The decision to have a bone marrow/stem cell transplant

    Decision Point

    Since I have mixed marrow in my blood ....I can't find a match for my stem cells and it's a low margin of success

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    0 Comments
    • bhawks40
    • Experience with Chronic Lymphocytic L...
    almost 6 years ago
    bhawks40's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    It's hard to say because I follow what the doctors said and I didn't have many side effects but I had some....and it did have a impa...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • bhawks40
    • Experience with Chronic Lymphocytic L...
    almost 6 years ago
    bhawks40's Avatar

    Phase 1

    Clinical Trial

    It's was a experimental one at IU Goshen Cancer Center

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    0 Comments
    • GailB
    • Experience with Slow Growing, Chronic Ly...
    about 6 years ago
    GailB's Avatar

    Drug or Chemo Therapy

    Held out until January by sheer determination. Did 6 rounds of Treanda and Rituxin. Started out great and actually had some days ...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • GailB
    • Experience with Slow Growing, Chronic Ly...
    about 6 years ago
    GailB's Avatar

    No Stem Cell Transplant

    Decision Point

    2013 After going to John Hopkins last fall decided to never go back to MD Anderson as John Hopkins agreed with my local Dr. did 6 ro...

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    0 Comments
    • GailB
    • Experience with Slow Growing, Chronic Ly...
    about 6 years ago
    GailB's Avatar

    Chemo brain

    Side Effects

    Not sure exactly what this is. But focusing and concentrating is very difficult these days. i have to write things down to remembe...

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    0 Comments
    • GailB
    • Experience with Slow Growing, Chronic Ly...
    about 6 years ago
    GailB's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Thankful that it just comes and goes and does not stay all the time.

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    1 Comment
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