• Glow
    • Experience with Multiple Myeloma
    over 1 year ago
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    Remission

    Celebration

    Only lasted about 19 months but in that time there was no detectable MM in my system.

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    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
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    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    Extreme fatigue. Eventually went away.

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    0 Comments
    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
    Glow's Avatar

    Started on Rev/Velcade injections/Dex twice a week. then had SCT.

    Clinical Trial

    The initial treatment wasn't too bad. The SCT had me so sick there were days I wished someone would just shoot me.

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    0 Comments
    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
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    Just Diagnosed

    Oh No

    Scared to death. Any cancer is terrible but I had to get an incurable one!

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    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
    nannyglo's Avatar

    Remission

    Celebration

    i gave my illness to God the moment i was told i had cancer. since that, i have not had one moment of stress. i live with a thankf...

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    1 Comment
    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
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    Taste change/loss

    Side Effects

    occasional.

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    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
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    Internal radiation

    Radiation

    have a little issue with swallowing now and then but nothing i cannot deal with. this was due to the area radiation.

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
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    Chemotherapy

    Drug or Chemo Therapy

    developed multiple clots in both lungs and legs. hospitalized. developed horrible neuropathy in R foot and hospitalized during whic...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
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    Surgery

    Procedure or Surgery

    large CA tumor on spine removed followed by 10 radiation txs. now on revlimid and valcade and in a strong remission.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. over 1 year ago
    RhodyRam18's Avatar

    Remission

    Celebration

    In multiple myeloma u are never cured so total remission is great let’s hope it last a looooog time

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    1 Comment
    • AlieRay
    • Experience with Multiple Myeloma
    over 1 year ago
    AlieRay's Avatar

    Just Diagnosed

    Oh No

    I was told Wednesday by my kidney Dr they found it

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    1 Comment
  2. over 1 year ago
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