• Dhuesey
    • Experience with Multiple Myeloma
    over 1 year ago
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    Cancer is back/Recurred

    Oh No

    Multiple Myeloma came back after STC in spinal fluid despite blood numbers showing still in remission

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    0 Comments
    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
    Glow's Avatar

    Got the flu in Nov.2017

    Oh No

    Had no treatment for about 3 months, MM came back. I got a pleural effusion in L lung that had to be drained. It resolved very quick...

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    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
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    Chemotherapy

    Drug or Chemo Therapy

    I was started on Kyprolis/Cytoxin/Dex. This was very harsh for me. It caused some cardiovascular side effects that are resolving sin...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
    Glow's Avatar

    Fell on ice hidden under snow & broke leg.

    Loss

    Had to stop treatment for about 3 months, MM came back.

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    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
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    Dara/rev/dex

    Drug or Chemo Therapy

    The Daratumumab was the easiest treatment I did.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
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    Remission

    Celebration

    Only lasted about 19 months but in that time there was no detectable MM in my system.

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    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
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    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    Extreme fatigue. Eventually went away.

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    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
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    Started on Rev/Velcade injections/Dex twice a week. then had SCT.

    Clinical Trial

    The initial treatment wasn't too bad. The SCT had me so sick there were days I wished someone would just shoot me.

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    • Glow
    • Experience with Multiple Myeloma
    over 1 year ago
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    Just Diagnosed

    Oh No

    Scared to death. Any cancer is terrible but I had to get an incurable one!

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    0 Comments
    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
    nannyglo's Avatar

    Remission

    Celebration

    i gave my illness to God the moment i was told i had cancer. since that, i have not had one moment of stress. i live with a thankf...

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    1 Comment
    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
    nannyglo's Avatar

    Taste change/loss

    Side Effects

    occasional.

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    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
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    Internal radiation

    Radiation

    have a little issue with swallowing now and then but nothing i cannot deal with. this was due to the area radiation.

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
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