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Surgery
Procedure or Surgery
So much swelling in neck ! Swelling down but still with discomfort
0 CommentsWent as Expected: Disagree Minimal Recovery: Disagree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree -
Quarterly blood tests.
Other Care
0 CommentsCurrent stage zero. Only being monitored by frequent blood tests.
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Low white blood cell counts (neutropenia)
Side Effects
0 CommentsAllergic reaction, fatigue, low blood counts,
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External radiation
Radiation
Just caused fatigue after treatment.
0 CommentsPainless Experience: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Neutral/NA -
Chemotherapy
Drug or Chemo Therapy
Side effects caused severe hives and had to stop after 4 instead of 6 but am not showing any signs as of now.
0 CommentsEasy to Do: Neutral/NA Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree -
Great PET scan results!
Celebration
0 CommentsPET Scan in Feb. 2018 after completion of chemo showed previous lymphoma tumors were gone.
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Cancer is back/Recurred
Oh No
1 CommentBone marrow biopsy reveals that MDS has recurred and is at the MRD (Minimum Residual Disease) level of 2.3% blast cells.
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Chemotherapy
Drug or Chemo Therapy
Consolidation chemotherapy to kill any remaining lymphoma cells.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Moderate intensity haploidentical allogeneic stem cell transplant.
Procedure or Surgery
30% mortality within the first three years. Acute, then chronic graft-versus-host-disease.
0 CommentsWent as Expected: Agree Minimal Recovery: Strongly Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
External radiation
Radiation
Total body irradiation (TBI) to kill my failed marrow.
0 CommentsPainless Experience: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Chemotherapy
Drug or Chemo Therapy
Transplant conditioning chemo received at 10X normal dosing.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Stem cell transplant. We had exhausted all lymphoma drugs and after two relapses and a muation/transformation, the liklihood of relapse was great.
Decision Point
0 CommentsIn 2009, there was no match found for a transplant in the world donor registry. In 2015, there was still no match. No siblings. My t...