1. over 1 year ago
    Grigb2105's Avatar

    External radiation

    Radiation

    Tiredness at 9th treatment need 18

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. over 1 year ago
    Grigb2105's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Tepic is a 24 hr 5 day infusion retuxin was difficult but rest was tolerable constipation and hair loss

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. over 1 year ago
    Grigb2105's Avatar

    Biopsy of lower distal femur

    Procedure or Surgery

    Cancer has son on crutches

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. over 1 year ago
    Grigb2105's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    Stem cell Therapy dendritic cell Therapy CAAT Therapy hyperbaric chamber ionic foot bath vitamin infusion infrared therapy Laetrile ...

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    0 Comments
    • asn2212
    • Experience with Diffuse Large B-Cell L...
    over 1 year ago
    asn2212's Avatar

    CAR-T ?

    Decision Point

    Expenses, stage of disease, new country, no insurance - resulted in indecision and eventually not being able to go for it as disease...

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    0 Comments
    • asn2212
    • Experience with Diffuse Large B-Cell L...
    over 1 year ago
    asn2212's Avatar

    Surgery

    Procedure or Surgery

    Resection in Dec 2016, ileostomy in June 2018

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • asn2212
    • Experience with Diffuse Large B-Cell L...
    over 1 year ago
    asn2212's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Long term impact is bad, but short term impact was manageable

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Debech
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Debech's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    1st treatment next week

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  5. over 1 year ago
    barbbigred's Avatar

    Remission

    Celebration

    In February 2018 I was deemed too high risk for stem cell transplant for mantle cell lymphoma. No further treatment options current...

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    0 Comments
    • palen2be
    • Experience with Non-Hodgkin Lymphoma ...
    over 1 year ago
    palen2be's Avatar

    Just Diagnosed

    Oh No

    I found out July 13th the tumor next to my spine is cancer.

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    3 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    over 1 year ago
    Joshwa's Avatar

    Cancer has spread/Metastasized

    Oh No

    May 2018 and I started to feel funny, bloating, cramps in my upper abdomen. It persisted for a few weeks and I contacted my PCP... E...

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    0 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    over 1 year ago
    Joshwa's Avatar

    External radiation

    Radiation

    Difinitive Radiotherapy December 18th 2017 to January 8th 2018, roughly... Had my mask made the same day we decided to go for radia...

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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