• Cookie48
    • Experience with Mantle Cell Lymphoma
    over 3 years ago
    Cookie48's Avatar

    Biopsy

    Procedure or Surgery

    visited orthepedic dr and mentioned could not lift left leg sideways-out of car etc--he said the nerve was damaged at groin during b...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 3 years ago
    Gymmom's Avatar

    Remission

    Celebration

    July 27th clear scan!!

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    2 Comments
  1. over 3 years ago
    Grammypat's Avatar

    Cancer has spread/Metastasized

    Oh No

    A colonoscopy showed 40 polyps that are lymphoma and dr suggested chemo

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    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 3 years ago
    Cookie48's Avatar

    Side Effects

    large weight gain---neuropathy feet but no pain-spinal pain-neckbase like headache with balance problem- sciatica-kidney pain-consti...

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    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 3 years ago
    Cookie48's Avatar

    Allergic reaction

    Side Effects

    I finally managed to get thru neulasta shot with help of claritin but the little patch/pump was excrutiating unbelievable pain!!!nev...

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    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 3 years ago
    Cookie48's Avatar

    Problem with doctor

    Oh No

    My thyroid levels got way off-tsh was 69 when normal less than 4--so dr changes me from synthroid to natural but only 60 mg to repla...

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    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 3 years ago
    Cookie48's Avatar

    Acupuncture

    Other Care

    because fluid retention is high due to my problems with steroids and hydronephrosis plus lymphdema of arms and leg-doing acupuncture...

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    0 Comments
    • 1957
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 3 years ago
    1957's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Doing pretty well going into maintenance now

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • 1957
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 3 years ago
    1957's Avatar

    Surgery

    Procedure or Surgery

    So much swelling in neck ! Swelling down but still with discomfort

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. over 3 years ago
    chrismarler4's Avatar

    Quarterly blood tests.

    Other Care

    Current stage zero. Only being monitored by frequent blood tests.

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    0 Comments
    • Momma4t
    • Experience with Non-Hodgkin Lymphoma (...
    over 3 years ago
    Momma4t's Avatar

    Low white blood cell counts (neutropenia)

    Side Effects

    Allergic reaction, fatigue, low blood counts,

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    0 Comments
    • Momma4t
    • Experience with Non-Hodgkin Lymphoma (...
    over 3 years ago
    Momma4t's Avatar

    External radiation

    Radiation

    Just caused fatigue after treatment.

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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