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Cancer is back/Recurred
Oh No
1 CommentBone marrow biopsy reveals that MDS has recurred and is at the MRD (Minimum Residual Disease) level of 2.3% blast cells.
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Chemotherapy
Drug or Chemo Therapy
Consolidation chemotherapy to kill any remaining lymphoma cells.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Moderate intensity haploidentical allogeneic stem cell transplant.
Procedure or Surgery
30% mortality within the first three years. Acute, then chronic graft-versus-host-disease.
0 CommentsWent as Expected: Agree Minimal Recovery: Strongly Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
External radiation
Radiation
Total body irradiation (TBI) to kill my failed marrow.
0 CommentsPainless Experience: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Chemotherapy
Drug or Chemo Therapy
Transplant conditioning chemo received at 10X normal dosing.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Stem cell transplant. We had exhausted all lymphoma drugs and after two relapses and a muation/transformation, the liklihood of relapse was great.
Decision Point
0 CommentsIn 2009, there was no match found for a transplant in the world donor registry. In 2015, there was still no match. No siblings. My t...
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A trial was created solely for my case. "TEC" Treanda (Bendamustine), Etoposide and Carboplatin.
Clinical Trial
0 CommentsThis combination was stunningly effective. It eliminated two aggressive T-Cell Lymphomas at stage IV-B (24 tumors plus spleen and il...
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Chemotherapy
Drug or Chemo Therapy
Pralatrexate, a more potent cousin of Methotrexate. Grade 3 oral mucositis. PET/CT showed disease progression.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Chemotherapy
Drug or Chemo Therapy
Back on Belinostat. PET/CT showed disease progression.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Chemotherapy
Drug or Chemo Therapy
Had a single infusion of Belinostat (Beleodaq), but stopped it to enter a clinical trial.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Cancer is back/Recurred
Oh No
0 CommentsRelapse also showed that it had mutated into two types of T-Cell Lymphoma: PTCL-NOS as well as AITL. WE increased the dosage of romi...
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Just Diagnosed
Oh No
0 CommentsI was shocked about my diagnoses. The docs moved very quick with tests, getting the port in and scheduling chemo.