• shamrock
    • Experience with Chronic Lymphocytic L...
    over 1 year ago
    shamrock's Avatar

    Just Diagnosed

    Oh No

    I went from having pneumonia to a to being sent to the hematologist/oncologist because of a really high WBC. Never did I expect to ...

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    1 Comment
    • Hilkei
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Hilkei's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Got the authorization for the chemotherapy. The reason it was so difficult is that the drug I'm on is Calquence specifically for re...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  1. over 1 year ago
    Copingwthis' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have had 2 treatments have 4 to go. I'm thankful the side effects have been really just hair gone and pain from neulastra. Missing...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. over 1 year ago
    Copingwthis' Avatar

    Implant chemotherapy port

    Procedure or Surgery

    All these appointments and procedures. Blood test every time I turn around. Loss of hours at work. This is going to be a long diffic...

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    Went as Expected: Not Specified
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. over 1 year ago
    Copingwthis' Avatar

    Just Diagnosed

    Oh No

    When first diagnosed I thought how am I going to take care of my wife my family. Just plain focused on my family. Wasn't worried abo...

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    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Cookie48's Avatar

    Constipation

    Side Effects

    The drugs for nausea plus pain plus other prescriptions contribute to bad constipation.stool softeners4 or more a day plus milk of m...

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    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Cookie48's Avatar

    Medicine for low white blood cell count

    Drug or Chemo Therapy

    Granix to build wbc, the first time ,I felt like my back was being cracked open and was not sure it was not a heart attack. My Dr wa...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Cookie48's Avatar

    Surgery

    Procedure or Surgery

    Removal of lymph node in upper leg. I was surprised by three in incision goin unto my leg.I thought it was a half inch bump in groin.

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Cookie48's Avatar

    Bone marrow removal

    Procedure or Surgery

    The light sedation kept me unaware and pretty much oblivious.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Cookie48's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I have had implanted lines three times but this was put in slightly offside.Tbe nurse tried to use it the next day , could not get i...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Cookie48's Avatar

    Just Diagnosed

    Oh No

    I went to ER because every breath I took produced pain below right rib cage. I was use to bowel obstruction and kidney infections so...

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    0 Comments
    • Ruth521
    • Experience with Diffuse Large B-Cell L...
    over 1 year ago
    Ruth521's Avatar

    Remission

    Celebration

    Remission 1/16/18!!!!

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    0 Comments
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