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Oh No
0 CommentsI am currently in remission after receiving Gazyva. A CT scan showed no adenopathy in the chest, abdomen and pelvis. HOWEVER, I rece...
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External radiation
Radiation
just started 20 treatments of radiation
0 CommentsPainless Experience: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Remission
Celebration
0 CommentsHad scan 5 months post chemo and all is clear. Getting port out soon!
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Mouth dryness
Side Effects
0 CommentsI still have problems with dry mouth also skin on neck got burns and whenever I get home or overheated it turns red. Very frustration
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External radiation
Radiation
Received 18 treatments 7/2017 due to reoccurance. The side effects were the worst.
0 CommentsPainless Experience: Strongly Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
Infection
Side Effects
0 CommentsCaused weakness on my left side. Nocardia & Brain abscess required 4 brain surgeries and over a year of treatment
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Chemotherapy
Drug or Chemo Therapy
The Chemo was not that bad it was the infection I got after my last session that had mad life so difficult. Nocardia Brain abscess.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Ibrutinib
Drug or Chemo Therapy
On a reduced dose but seeing a slow recovery to lab numbers
0 CommentsEasy to Do: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
Surgery
Procedure or Surgery
Has some skin cancer removed from shoulder
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
Whether to accept high risk of stem cell transplant
Decision Point
1 CommentHigh risk was overwhelming and stem cell transplant is not an option for me. Insurance has declined to cover maintenance rituximab.
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External radiation
Radiation
20 on chest, 15 on whole tumor, 5 focused on active spot
0 CommentsPainless Experience: Neutral/NA Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Neutral/NA