1. over 3 years ago
    kdavis11259's Avatar

    Oh No

    I am currently in remission after receiving Gazyva. A CT scan showed no adenopathy in the chest, abdomen and pelvis. HOWEVER, I rece...

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    0 Comments
    • Flood
    • Experience with Diffuse Large B-Cell Lym...
    over 3 years ago
    Flood's Avatar

    Side Effects

    none yet only one treatment so far

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    0 Comments
    • Flood
    • Experience with Diffuse Large B-Cell Lym...
    over 3 years ago
    Flood's Avatar

    External radiation

    Radiation

    just started 20 treatments of radiation

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • GilDBA
    • Experience with Diffuse Large B-Cell Ly...
    over 3 years ago
    GilDBA's Avatar

    Remission

    Celebration

    Had scan 5 months post chemo and all is clear. Getting port out soon!

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    0 Comments
  2. over 3 years ago
    dlcmeighan's Avatar

    Mouth dryness

    Side Effects

    I still have problems with dry mouth also skin on neck got burns and whenever I get home or overheated it turns red. Very frustration

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    0 Comments
  3. over 3 years ago
    dlcmeighan's Avatar

    External radiation

    Radiation

    Received 18 treatments 7/2017 due to reoccurance. The side effects were the worst.

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. over 3 years ago
    dlcmeighan's Avatar

    Infection

    Side Effects

    Caused weakness on my left side. Nocardia & Brain abscess required 4 brain surgeries and over a year of treatment

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    0 Comments
  5. over 3 years ago
    dlcmeighan's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The Chemo was not that bad it was the infection I got after my last session that had mad life so difficult. Nocardia Brain abscess.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • FayLynn
    • Experience with Chronic Lymphocytic Le...
    over 3 years ago
    FayLynn's Avatar

    Ibrutinib

    Drug or Chemo Therapy

    On a reduced dose but seeing a slow recovery to lab numbers

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • FayLynn
    • Experience with Chronic Lymphocytic Le...
    over 3 years ago
    FayLynn's Avatar

    Surgery

    Procedure or Surgery

    Has some skin cancer removed from shoulder

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. over 3 years ago
    barbbigred's Avatar

    Whether to accept high risk of stem cell transplant

    Decision Point

    High risk was overwhelming and stem cell transplant is not an option for me. Insurance has declined to cover maintenance rituximab.

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    1 Comment
  7. over 3 years ago
    keirsten19332's Avatar

    External radiation

    Radiation

    20 on chest, 15 on whole tumor, 5 focused on active spot

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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