• Miles
    • Experience with T-Cell Lymphoma
    about 9 years ago
    Miles' Avatar

    Photo pherisis ( sp) for GVHD post Transplant

    Clinical Trial

    I had Photo Pherisis tratments and Hyper-baric Chamber treatment for months very dificyuult alway sick .

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    • Miles
    • Experience with T-Cell Lymphoma
    about 9 years ago
    Miles' Avatar

    Total Body Radiation

    Radiation

    TBR - during BMT horrible Side effects could not eat Solid Food for over a month , but we survived

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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    • Miles
    • Experience with T-Cell Lymphoma
    about 9 years ago
    Miles' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo protocol = CHOP - very hard to go thru - not a Very memorial experience, we had to use a specific Suppository to manage...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • btrotto
    • Experience with Cutaneous T-Cell Lymphoma
    about 9 years ago
    btrotto's Avatar

    Other

    Other Care

    Extrac - laser therapy - ongoing

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    • Laurasalzy
    • Experience with Peripheral T-Cell L...
    about 9 years ago
    Laurasalzy's Avatar

    Low white blood cell counts (neutropenia)

    Side Effects

    Side effects were complete hair loss, mouth sores so bad that I couldn't even sip water, vomiting, weakness in legs, incontinence, f...

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    0 Comments
    • Laurasalzy
    • Experience with Peripheral T-Cell L...
    about 9 years ago
    Laurasalzy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I spent close to six months traveling between MD Anderson Cancer Hospital in Houston and Florida where I reside. It was the most di...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • Laurasalzy
    • Experience with Peripheral T-Cell L...
    about 9 years ago
    Laurasalzy's Avatar

    Diagnosed

    Oh No

    I was running fevers daily for about 9 months and since I had undergone open heart surgery a year before, all of my doctors were th...

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    • Podie1956
    • Experience with Anaplastic Large Cel...
    about 9 years ago
    Podie1956's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Some chemo brought terrible side effects, some didn't. Hard to plan.

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    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Podie1956
    • Experience with Anaplastic Large Cel...
    about 9 years ago
    Podie1956's Avatar

    Diagnosed

    Oh No

    Endoscopy on 7/3/12. Told it was probably stomach cancer. On 7/16/12 doctor called and said it was lymphoma.

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    • Rene
    • Experience with T-Cell Lymphoma
    about 9 years ago
    Rene's Avatar

    Finished treatment

    Celebration

    No signs of cancer. Showed good scans for 4 years after treatment.

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    • Rene
    • Experience with T-Cell Lymphoma
    about 9 years ago
    Rene's Avatar

    Depression/Anxiety

    Side Effects

    Chemo brain, constipation, dry mouth, depression, permanent neuropathy in feet.

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    • Rene
    • Experience with T-Cell Lymphoma
    about 9 years ago
    Rene's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had minimal side effects from R-Chop chemo.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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