• danirn18
    • Experience with Chordoma, Bone Cancer
    over 5 years ago
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    Anniversary

    Celebration

    My daughter, Alyson, was diagnosed with Chordoma in June 2011. She has had three brain surgeries and 8 weeks of radiation. She is, a...

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    • SSCAL
    • Experience with Chordoma, Bone Cancer
    about 7 years ago
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    Currently two years into trial at Methodist Hospital in Omaha.

    Clinical Trial

    I'm currently two years into the study. The drug i'm taking, dasatinib, is used for patients with blood disorders. My tumor growth h...

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    • SSCAL
    • Experience with Chordoma, Bone Cancer
    about 7 years ago
    SSCAL's Avatar

    Surgery

    Procedure or Surgery

    Two months after surgery I underwent 43 treatments of proton beam radiation at Mass General in Boston. Three years later the chordom...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • SSCAL
    • Experience with Chordoma, Bone Cancer
    about 7 years ago
    SSCAL's Avatar

    Health insurance issue

    Oh No

    BCBS claimed my proton beam radiation was "investigational" so they would not pay! After weeks of futile phone calls to BCBS, my wif...

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  1. almost 2 years ago
    Blueeyes1979's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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