1. over 3 years ago
    MeToo15's Avatar

    Surgery

    Procedure or Surgery

    They fused my head down to C-4 the first day. The second day, they spent 10 hours "debulking" the tumor through my mouth.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • KJLaMore
    • Experience with Brain and Spinal Cord...
    over 3 years ago
    KJLaMore's Avatar

    Other

    Procedure or Surgery

    Surgery went well. Some cognitive loss. Docs told us not to expect that or any other losses to return. In fact the chemo/radiatio...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • KJLaMore
    • Experience with Brain and Spinal Cord...
    over 3 years ago
    KJLaMore's Avatar

    Younger sister diagnosed with grade 3 astrocytoma in brain

    Oh No

    Sister diagnosed, after falling ill for four days while on vacation in FL. Emergency surgery removed fist sized tumor. She is a si...

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    0 Comments
    • Suzy-q
    • Experience with Brain and Spinal Cord T...
    over 3 years ago
    Suzy-q's Avatar

    Celebration

    6th Cancer Birthday! Doesn't seem like this "normal" has been six years. I still am scared every time I go for an MRI, I Don't care...

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    0 Comments
  2. almost 4 years ago
    fredpickering's Avatar

    Drug or Chemo Therapy

    it 's my stepbrother. stage 4 cancer tumors. chemo and radiation treatments started in February 2015

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • RubyCat
    • Experience with Brain and Spinal Cord ...
    almost 4 years ago
    RubyCat's Avatar

    External radiation

    Radiation

    Only the last two of thirty treatments remaining. Experiencing minimal fatigue and no vomiting, so an easy journey towards stronger...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • RubyCat
    • Experience with Brain and Spinal Cord ...
    almost 4 years ago
    RubyCat's Avatar

    External radiation

    Radiation

    Proton beam therapy is an excellent choice for those of us who require radiation focused on a small area. There are several facilit...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • RubyCat
    • Experience with Brain and Spinal Cord ...
    almost 4 years ago
    RubyCat's Avatar

    Surgery

    Procedure or Surgery

    Did not enjoy about 6 weeks of double vision, but it did resolve without intervention.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • RubyCat
    • Experience with Brain and Spinal Cord ...
    almost 4 years ago
    RubyCat's Avatar

    to have surgery soon or delay surgery for six months

    Decision Point

    The idea of waiting six months and risk having damage that may not return to normal spurred me to have surgery soon.

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    0 Comments
  3. almost 4 years ago
    valleyofroses' Avatar

    Procedure or Surgery

    They removed part of my skull

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. almost 4 years ago
    MrsGilbert's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I'm on three different types of chemo and when I'm on them it greatly affects my day to day living. I have extreme fatigue, mental f...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    2 Comments
  5. almost 4 years ago
    MrsGilbert's Avatar

    External radiation

    Radiation

    I received six weeks of radiation to my head. I lost what hair I had grown, my eyebrows, my eye lashes, and I had a terrible burn on...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
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