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External radiation
Radiation
At that time, only Proton Therapy could "kill" a chordoma. On my 5 year exam, was told it was back....and was basically dismissed a...
0 CommentsPainless Experience: Strongly Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Neutral/NA -
Surgery
Procedure or Surgery
They fused my head down to C-4 the first day. The second day, they spent 10 hours "debulking" the tumor through my mouth.
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Strongly Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
Other
Procedure or Surgery
Surgery went well. Some cognitive loss. Docs told us not to expect that or any other losses to return. In fact the chemo/radiatio...
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Neutral/NA Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Strongly Disagree -
Younger sister diagnosed with grade 3 astrocytoma in brain
Oh No
0 CommentsSister diagnosed, after falling ill for four days while on vacation in FL. Emergency surgery removed fist sized tumor. She is a si...
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Celebration
0 Comments6th Cancer Birthday! Doesn't seem like this "normal" has been six years. I still am scared every time I go for an MRI, I Don't care...
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Drug or Chemo Therapy
it 's my stepbrother. stage 4 cancer tumors. chemo and radiation treatments started in February 2015
0 CommentsEasy to Do: Strongly Disagree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Strongly Disagree -
External radiation
Radiation
Only the last two of thirty treatments remaining. Experiencing minimal fatigue and no vomiting, so an easy journey towards stronger...
0 CommentsPainless Experience: Strongly Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
External radiation
Radiation
Proton beam therapy is an excellent choice for those of us who require radiation focused on a small area. There are several facilit...
0 CommentsPainless Experience: Strongly Agree Minimal Side Effects: Strongly Agree Minimal Impact to Daily Life: Strongly Agree -
Surgery
Procedure or Surgery
Did not enjoy about 6 weeks of double vision, but it did resolve without intervention.
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
to have surgery soon or delay surgery for six months
Decision Point
0 CommentsThe idea of waiting six months and risk having damage that may not return to normal spurred me to have surgery soon.
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Procedure or Surgery
They removed part of my skull
0 CommentsWent as Expected: Neutral/NA Minimal Recovery: Neutral/NA Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Strongly Disagree -
Chemotherapy
Drug or Chemo Therapy
I'm on three different types of chemo and when I'm on them it greatly affects my day to day living. I have extreme fatigue, mental f...
2 CommentsEasy to Do: Strongly Agree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree
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Videos
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WhatNext, What it is, and How it Can Help You
Brain and Spinal Cord Tumors in Adults