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Work problems
Oh No
0 Commentsdue to problems with speech and memory my husband could no longer be a teacher
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throat and neck
Procedure or Surgery
In October of 2015 I was rushed to hospital and was told I had to have surgery immediately to take out tonsils so I did just to fin...
0 CommentsWent as Expected: Not Specified Minimal Recovery: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Strongly Agree -
Surgery
Procedure or Surgery
The first day of surgery, June 5th, 2007, they fused my head down to C-4 and put me into ICU on the ventilator until the next mornin...
0 CommentsWent as Expected: Strongly Disagree Minimal Recovery: Disagree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree -
Alternative and diet
Other Care
0 CommentsI do not discuss what is working for me because so far the FDA has shut down the access to things that had been working for me. Thi...
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Celebration
0 CommentsI celebrate the fact that I have experienced this "dreaded" disease, cancer. I have learned a lot about myself and because of the p...
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Side Effects
0 CommentsThe Photon and Proton initially did damage to one side of my salivary glands, but that has slowly returned over the years. (You do n...
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External radiation
Radiation
At that time, only Proton Therapy could "kill" a chordoma. On my 5 year exam, was told it was back....and was basically dismissed a...
0 CommentsPainless Experience: Strongly Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Neutral/NA -
Surgery
Procedure or Surgery
They fused my head down to C-4 the first day. The second day, they spent 10 hours "debulking" the tumor through my mouth.
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Strongly Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
Other
Procedure or Surgery
Surgery went well. Some cognitive loss. Docs told us not to expect that or any other losses to return. In fact the chemo/radiatio...
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Neutral/NA Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Strongly Disagree -
Younger sister diagnosed with grade 3 astrocytoma in brain
Oh No
0 CommentsSister diagnosed, after falling ill for four days while on vacation in FL. Emergency surgery removed fist sized tumor. She is a si...
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Celebration
0 Comments6th Cancer Birthday! Doesn't seem like this "normal" has been six years. I still am scared every time I go for an MRI, I Don't care...
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Videos
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WhatNext, What it is, and How it Can Help You
Brain and Spinal Cord Tumors in Adults