• slynn
    • Experience with High-Grade Astrocytoma (...
    over 4 years ago
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    Fatigue (tiredness)

    Side Effects

    chemotherapy caused nausea and fatigue

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    • slynn
    • Experience with High-Grade Astrocytoma (...
    over 4 years ago
    slynn's Avatar

    Work problems

    Oh No

    due to problems with speech and memory my husband could no longer be a teacher

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    0 Comments
    • Papa1234
    • Experience with Brain and Spinal Cord...
    over 4 years ago
    Papa1234's Avatar

    throat and neck

    Procedure or Surgery

    In October of 2015 I was rushed to hospital and was told I had to have surgery immediately to take out tonsils so I did just to fin...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  1. over 4 years ago
    MeToo15's Avatar

    Surgery

    Procedure or Surgery

    The first day of surgery, June 5th, 2007, they fused my head down to C-4 and put me into ICU on the ventilator until the next mornin...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. over 4 years ago
    MeToo15's Avatar

    Alternative and diet

    Other Care

    I do not discuss what is working for me because so far the FDA has shut down the access to things that had been working for me. Thi...

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  3. over 4 years ago
    MeToo15's Avatar

    Celebration

    I celebrate the fact that I have experienced this "dreaded" disease, cancer. I have learned a lot about myself and because of the p...

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  4. over 4 years ago
    MeToo15's Avatar

    Side Effects

    The Photon and Proton initially did damage to one side of my salivary glands, but that has slowly returned over the years. (You do n...

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  5. over 4 years ago
    MeToo15's Avatar

    External radiation

    Radiation

    At that time, only Proton Therapy could "kill" a chordoma. On my 5 year exam, was told it was back....and was basically dismissed a...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  6. over 4 years ago
    MeToo15's Avatar

    Surgery

    Procedure or Surgery

    They fused my head down to C-4 the first day. The second day, they spent 10 hours "debulking" the tumor through my mouth.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • KJLaMore
    • Experience with Brain and Spinal Cord...
    over 4 years ago
    KJLaMore's Avatar

    Other

    Procedure or Surgery

    Surgery went well. Some cognitive loss. Docs told us not to expect that or any other losses to return. In fact the chemo/radiatio...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • KJLaMore
    • Experience with Brain and Spinal Cord...
    over 4 years ago
    KJLaMore's Avatar

    Younger sister diagnosed with grade 3 astrocytoma in brain

    Oh No

    Sister diagnosed, after falling ill for four days while on vacation in FL. Emergency surgery removed fist sized tumor. She is a si...

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    0 Comments
    • Suzy-q
    • Experience with Brain and Spinal Cord T...
    over 4 years ago
    Suzy-q's Avatar

    Celebration

    6th Cancer Birthday! Doesn't seem like this "normal" has been six years. I still am scared every time I go for an MRI, I Don't care...

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    0 Comments
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