• honey216
    • Experience with Spindle Cell Tumor
    over 5 years ago
    honey216's Avatar

    Surgery

    Procedure or Surgery

    we were prepared for a2-5 hr surgery and the possibility of cutting the Brachial Plexus (nerve branch that controls my right arm). S...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. over 5 years ago
    Butterflylade's Avatar

    Just to hear the words U Have Cancer

    Decision Point

    My choice was to cry or listen to what the dr has planned to treat this monster. So, I stood firm & tall not letting my emotions get...

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    0 Comments
  2. over 5 years ago
    Butterflylade's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    After 2 yrs I still vomit & they can't find out why. Food is beginning to have a much better taste to it. I still get fatigued have ...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. over 5 years ago
    Butterflylade's Avatar

    Remission

    Celebration

    1st I was going into New York City to Columbia Presbytarian Hospital to get on a Lung Transplant List due to my lung disease when on...

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    1 Comment
  4. over 5 years ago
    akristine's Avatar

    Cancer is back/Recurred

    Oh No

    My liposarcoma hasn't returned but after a routine mammogram two weeks ago, an ultrasound and biopsy, I now have ductal carcinoma in...

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    1 Comment
    • mudbug365
    • Experience with Sarcoma - Adult Soft...
    over 5 years ago
    mudbug365's Avatar

    Mouth dryness

    Side Effects

    Along with a few other problems

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    0 Comments
    • mudbug365
    • Experience with Sarcoma - Adult Soft...
    over 5 years ago
    mudbug365's Avatar

    Money

    Oh No

    Are you sure oh no

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    0 Comments
  5. over 5 years ago
    chaostocalm's Avatar

    Drug or Chemo Therapy

    I'm on Votrient, have been for 2 1/2 years. Just had another tumor removed, back on Votrient. Doctors say nothing else to do and r...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    over 5 years ago
    AlanGK's Avatar

    tumor was 99% necrotic at surgery

    Celebration

    scans are clear 12 months post surgery

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    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    over 5 years ago
    AlanGK's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Finished aggressive chemo earlier this year, but still on heavy doses of pain meds. Hate chemo brain and pain med brain. Started wit...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    over 5 years ago
    AlanGK's Avatar

    left internal hemi-pelvectomy

    Procedure or Surgery

    hemi-pelvoctomy with reconstruction using fibula

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • deverd
    • Experience with Sarcoma - Adult Soft Ti...
    over 5 years ago
    deverd's Avatar

    Health insurance issue

    Oh No

    Still waiting for insurance to approve treatment.

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    0 Comments
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