• crudd123
    • Experience with Sarcoma - Adult Soft ...
    almost 5 years ago
    crudd123's Avatar

    Other Care

    Having genetic testing done! They said the results will be in about 3-4 weeks from now!

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    1 Comment
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    about 5 years ago
    cathy1967's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Easier than radiation- 72 hour nausea medication with chemo -can only have 5 -6 treatments with this drug - it causes heart issues

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    about 5 years ago
    cathy1967's Avatar

    External radiation

    Radiation

    10 treatments-radiation fine -side effects awful- tired,nausea and no appetite

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. about 5 years ago
    explorer25m's Avatar

    I decided to stop my current medication because it made me too miserable and sick to want to live through it. Im done with medications

    Decision Point

    Ive come to a point where my Dr. currently has no more meds for me to try and after almost 7 years, im done with medications that ma...

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    2 Comments
  2. about 5 years ago
    explorer25m's Avatar

    Lost loved one

    Loss

    My best friend and the one person I shared me trials and tribulations of cancer with died of brain cancer last summer

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    0 Comments
  3. about 5 years ago
    Beckyhughes' Avatar

    Misdiagnosed

    Oh No

    For almost a year, we were told the pain stemmed from a muscle spasm. Five days ago my life turned upside down when an MRI showed ca...

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    0 Comments
    • PattiJ
    • Experience with Fibrosarcoma, Adult Sof...
    about 5 years ago
    PattiJ's Avatar

    External radiation

    Radiation

    I finished radiation therapy 2 weeks ago. It was a 7 week course of IMRT. I was hospitalized durin treatment for 3 days because of d...

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • JRitter
    • Experience with Fibrosarcoma, Adult So...
    about 5 years ago
    JRitter's Avatar

    MRI and CT Scans show no sign of reoccurrence.

    Celebration

    Last week had my scans, and they showed no sign of cancer. Next scan will take place in August. I have been treated at the Compreh...

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    0 Comments
    • JRitter
    • Experience with Fibrosarcoma, Adult So...
    about 5 years ago
    JRitter's Avatar

    Should I have chemotherapy after the radiation treatment?

    Decision Point

    My hematologist recommended that I begin chemotherapy as soon as I was finished with my radiation treatments. I was uncomfortable a...

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    0 Comments
    • JRitter
    • Experience with Fibrosarcoma, Adult So...
    about 5 years ago
    JRitter's Avatar

    External radiation

    Radiation

    I had 28 treatments. Because I had nerve damage from the surgery, I really didn't experience a burn, but my skin did turn brown. I...

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • JRitter
    • Experience with Fibrosarcoma, Adult So...
    about 5 years ago
    JRitter's Avatar

    Surgery

    Procedure or Surgery

    At first, the recovery was hard...I could't lift my left leg. But as time when by, things have improved. The scar still hurts mont...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. about 5 years ago
    HygienistMom's Avatar

    External radiation

    Radiation

    Just completed 33 radiation treatments following removal of a 3.4 cm synovial sarcoma on my right ankle. Tolerated the procedure we...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
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