1. almost 3 years ago
    pinkpeachescat's Avatar

    Expanded Access Clinical Trial for Merck

    Clinical Trial

    It was for Keytruda, before it was FDA approved for people like me that would not usually be eligible. It was a good experience, the...

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  2. almost 3 years ago
    pinkpeachescat's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Keytruda/Opdivo for 2 years. I stayed on Keytruda for about 9 months, then switched to Opdivo because I was fainting when they would...

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. almost 3 years ago
    pinkpeachescat's Avatar

    Surgery to remove cancer that has spread

    Procedure or Surgery

    Full vertical scar on my abdomen, difficult recovery because of the abdominal muscles being cut. The large tumor ruptured, and burs...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. almost 3 years ago
    pinkpeachescat's Avatar

    Cancer has spread/Metastasized

    Oh No

    Tumor in abdomen (baseball sized), in ovaries

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  5. almost 3 years ago
    pinkpeachescat's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Yervoy, 4 doses

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. almost 3 years ago
    pinkpeachescat's Avatar

    Surgery to remove cancer that has spread

    Procedure or Surgery

    Craniotomy

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. almost 3 years ago
    pinkpeachescat's Avatar

    Other

    Radiation

    Gamma knife Radiation. Side effect, eccess swelling in the brain

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  8. almost 3 years ago
    pinkpeachescat's Avatar

    Cancer has spread/Metastasized

    Oh No

    Brain tumor, now I'm stage 4!

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    0 Comments
  9. almost 3 years ago
    pinkpeachescat's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    High Dose Interferon, 9 months. Very difficult, in bed with fever for most of the time.

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  10. almost 3 years ago
    pinkpeachescat's Avatar

    External radiation

    Radiation

    25 doses to my left neck region. Loss of taste, painful to eat swallow and loss of speach.

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
  11. almost 3 years ago
    pinkpeachescat's Avatar

    Surgery to remove cancer that has spread

    Procedure or Surgery

    Left Neck Dissection. Salivary gland, tumor, plus several lymph nodes. Was found to be a large tumor in my lymph nodes; amelanotic m...

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  12. almost 3 years ago
    pinkpeachescat's Avatar

    Cancer has spread/Metastasized

    Oh No

    I found a lump on my neck that is a cancerous tumor, spread from an unknown source

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