• Mprude20
    • Experience with Nodular sclerosing
    about 4 years ago
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    Biopsy- Liver

    Procedure or Surgery

    Was told that the Tumor was Nodular Hydrophlasia. However they were wrong. This was the first sign of Hodgkins

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • kholzer
    • Experience with Hodgkin Disease
    about 4 years ago
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    Hair loss (alopecia)

    Side Effects

    I lost all the hair on my head, including eyebrows and eyelashes but NOT on my legs or armpits...really made me mad! LOL

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    1 Comment
    • kholzer
    • Experience with Hodgkin Disease
    about 4 years ago
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    Depression/Anxiety

    Side Effects

    I began having anxiety attacks and had to be medicated before treatments. I was also put on an antidepressant because life just see...

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    0 Comments
    • kholzer
    • Experience with Hodgkin Disease
    about 4 years ago
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    External radiation

    Radiation

    I had to take breaks in order to heal enough to continue.

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    Painless Experience: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • kholzer
    • Experience with Hodgkin Disease
    about 4 years ago
    kholzer's Avatar

    Depression medicine

    Drug or Chemo Therapy

    I needed this in order to not be sad ALL THE TIME. I got to a point that I was just dad and crying about EVERYTHING and my husband d...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • kholzer
    • Experience with Hodgkin Disease
    about 4 years ago
    kholzer's Avatar

    Marinol

    Drug or Chemo Therapy

    This was the only was I was able to function and take care of myself during chemo. I wish I had known about it sooner!

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • kholzer
    • Experience with Hodgkin Disease
    about 4 years ago
    kholzer's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I did not handle chemotherapy well and had to be put in a private room because I would vomit the entire time. I would them be sick a...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  1. about 4 years ago
    srkthemom's Avatar

    Drug or Chemo Therapy

    This has kicked my 25 year old daughters butt. I am keeping her girls who are 4 twins as much as I can. I so wish that this was me...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • kholzer
    • Experience with Hodgkin Disease
    about 4 years ago
    kholzer's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    The recovery was more painful than I expected but well worth having it. It took me years after having it removed before I no longer ...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • KBorba
    • Experience with Hodgkin Disease
    about 4 years ago
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    Remission

    Celebration

    I was in remission for ten years and am not considered cured. I am now dealing with long term side effects of treatment which I find...

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    1 Comment
    • KBorba
    • Experience with Hodgkin Disease
    about 4 years ago
    KBorba's Avatar

    External radiation

    Radiation

    I was burned by the radiation and my stomach was also radiated. Now 11 years later the hair on the back of my neck (where radiated) ...

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • KBorba
    • Experience with Hodgkin Disease
    about 4 years ago
    KBorba's Avatar

    Nausea/Vomiting

    Side Effects

    I am 11 years in remission and still have constant nasuea. It started during my chemo and as never gone away. There are times when i...

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    1 Comment
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