• MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 7 years ago
    MaryD's Avatar

    I made a decsion to LIVE

    Decision Point

    Even though I still have side effects, I make it a point to get out of bed every morning, (and I got a rescue dog "Missy) and I walk...

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    0 Comments
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 7 years ago
    MaryD's Avatar

    Chemo brain

    Side Effects

    beside the CHemo brain, horrible leg pain on the day of Chemo, and sleepness, all over body pain (still have that) ...confusion, nau...

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    0 Comments
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 7 years ago
    MaryD's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The day of chemo was horrible the first night my legs hurts so much and could not sleep. Then in a few days I began to feel a little...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 7 years ago
    MaryD's Avatar

    Surgery

    Procedure or Surgery

    At first I was so scared, the pain and the long incision...ugh! But gradually I began to recover ....and now in remission since 8/09

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • cldunn5
    • Experience with Bile Duct (Cholangioca...
    almost 8 years ago
    cldunn5's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had 12 weeks of Cisplatin and Gemcitabine. Side effects were managable. Toward the end I got very sick and was having awful stom...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Bellamore
    • Experience with Bile Duct (Cholangio...
    almost 8 years ago
    Bellamore's Avatar

    Cancer has spread/Metastasized

    Oh No

    mets in lymph nodes. means I have to have system chemo. can't use my hepatic artery infusion pump. luckily the symtons are almost nil.

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    1 Comment
    • sanchezlil
    • Experience with Bile Duct (Cholangi...
    almost 8 years ago
    sanchezlil's Avatar

    Problem with doctor

    Oh No

    Hello, My Mom was diagnosed with having a mass in the bile duct over a year ago. We've done all kinds of tests...2 biopsies (wor...

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    2 Comments
    • sanchezlil
    • Experience with Bile Duct (Cholangi...
    almost 8 years ago
    sanchezlil's Avatar

    Fatigue (tiredness)

    Side Effects

    Hello I'm hoping someone can give some advise. My Mom has bile duct cancer. She is normally an energizer bunny. But lately she...

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    1 Comment
    • Bellamore
    • Experience with Bile Duct (Cholangio...
    almost 8 years ago
    Bellamore's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have a Hepatic Artery Infusion Pump implanted in my abdomen. It pumps chemo directly to my liver so there are no side effects. Unf...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Bellamore
    • Experience with Bile Duct (Cholangio...
    almost 8 years ago
    Bellamore's Avatar

    Diagnosed

    Oh No

    I was diagnosed with bile duct cancer in November of 2011. The tumor is the size of an orange and has been growing for at least 15 y...

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    0 Comments
    • Bellamore
    • Experience with Bile Duct (Cholangio...
    almost 8 years ago
    Bellamore's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    I haven't started yet, but I want to do acupuncture. My doctor is totally against any herbal medicines.

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    0 Comments
    • Bellamore
    • Experience with Bile Duct (Cholangio...
    almost 8 years ago
    Bellamore's Avatar

    Body part/function

    Loss

    I lost my waistline. I worked hard at keeping fit and in shape and now I have a pump the size of a hocky puck protruding from my abd...

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    0 Comments
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