• mja511
    • Experience with Fast Growing, Chronic L...
    almost 3 years ago
    mja511's Avatar

    Imbruvica

    Drug or Chemo Therapy

    I've now been on Imbruvica for 10 months and feeling great.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  1. almost 3 years ago
    seadoodude2002's Avatar

    Leukemia trial in 2010

    Clinical Trial

    I'm starting to get symptoms back and would like to be put on a trial.

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    0 Comments
    • Melly
    • Experience with Chronic Myeloid Leukemia...
    almost 3 years ago
    Melly's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was on Gleevec 400mg and it was working. I was switched to the generic form. It did not work. Anyone else try Gleevec vs Generic

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • ShariSLL
    • Experience with Chronic Lymphocytic L...
    almost 3 years ago
    ShariSLL's Avatar

    Remission

    Celebration

    MRD-/CR @ 6 months BMB. Now into 3rd year CR.

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    1 Comment
    • ShariSLL
    • Experience with Chronic Lymphocytic L...
    almost 3 years ago
    ShariSLL's Avatar

    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    ... & bronchial infections for following 17 months off & on, although never became pneumonia. Neutropenic, low platelets -- yadda, y...

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    0 Comments
    • ShariSLL
    • Experience with Chronic Lymphocytic L...
    almost 3 years ago
    ShariSLL's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    FCR x 6 months. Had to work f/t to keep insurance, no caretaker (or cancer fairies to take care of life's responsibilities) = pretty...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • ShariSLL
    • Experience with Chronic Lymphocytic L...
    almost 3 years ago
    ShariSLL's Avatar

    Biopsy

    Procedure or Surgery

    Didn't take pain killers given; back to work ~ 1 hr. after being awakened.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • yorhonda
    • Experience with Acute Myeloid Leukemi...
    almost 3 years ago
    yorhonda's Avatar

    Birthday

    Celebration

    I just celebrated my 60th birthday!! I am so blessed! G-d had a plan for me because I was not done. I started working with children ...

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    0 Comments
  2. almost 3 years ago
    Meenubhandari's Avatar

    Gleevac 400mg

    Drug or Chemo Therapy

    Having muscle cramps n acidity

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • MedAssist
    • Experience with Chronic Myeloid Leuk...
    almost 3 years ago
    MedAssist's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Oral chemo daily for life, side effects take time to wane. Its been hard.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • MedAssist
    • Experience with Chronic Myeloid Leuk...
    almost 3 years ago
    MedAssist's Avatar

    bone marrow biopsy

    Procedure or Surgery

    My sciatic took quite the hit,which is not the norm. It took a while in PT to recover.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • MedAssist
    • Experience with Chronic Myeloid Leuk...
    almost 3 years ago
    MedAssist's Avatar

    dx

    Oh No

    Dx of CML via CBC & Lith panel

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    0 Comments
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