• ElaineM
    • Experience with Multiple Myeloma
    over 2 years ago
    ElaineM's Avatar

    Just Diagnosed

    Oh No

    Went to internist with another minor problem. The blood test he did showed high protein and, thanks to God, he knew to follow up wi...

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    0 Comments
    • Jenno2
    • Experience with Multiple Myeloma
    over 2 years ago
    Jenno2's Avatar

    Clinical Trial

    I was DX in 2011 with multiple myeloma stage 3 . I am high risk including -17p deletion. I participate in clinical trials. Even if ...

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    • Scarymom
    • Experience with Multiple Myeloma
    over 2 years ago
    Scarymom's Avatar

    Depression medicine

    Drug or Chemo Therapy

    Eventually went through stem cell transplant

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    Easy to Do: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
    • Dianepar
    • Experience with Multiple Myeloma
    over 2 years ago
    Dianepar's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Need to be careful about dental work

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
    • Dianepar
    • Experience with Multiple Myeloma
    over 2 years ago
    Dianepar's Avatar

    decadron

    Drug or Chemo Therapy

    Crash days are difficult. Affecting skin sleep etc

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Dianepar
    • Experience with Multiple Myeloma
    over 2 years ago
    Dianepar's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Neuropathy and fatigue impact daily life

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Dianepar
    • Experience with Multiple Myeloma
    over 2 years ago
    Dianepar's Avatar

    External radiation

    Radiation

    Only 9 days up alleviate pain. Was successful

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Pat14
    • Experience with Multiple Myeloma
    over 2 years ago
    Pat14's Avatar

    Cough

    Side Effects

    Short period of diarrhea. Imodium successful with one dose.

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    • Pat14
    • Experience with Multiple Myeloma
    over 2 years ago
    Pat14's Avatar

    Surgery

    Procedure or Surgery

    Right axillary lymph node removed. Neg for cancer

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  1. over 2 years ago
    warrior84's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Well my Myeloma relapsed and I'm back in weekly treatment but takes so much longer that it did first time around but much different ...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Glenelyn
    • Experience with Multiple Myeloma
    over 2 years ago
    Glenelyn's Avatar

    Isatuximab

    Clinical Trial

    I began trial in August 2017 because my igG was over 6160 and is now 257. my Kappa/Lambda ratio was 4.39 and is now 1.38. It’s wor...

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    1 Comment
  2. over 2 years ago
    annetteOR's Avatar

    Birthday

    Celebration

    3rd Year Post Transplant birthday was April 3, 2018. Remission continues!

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    0 Comments
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