• nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
    nannyglo's Avatar

    Taste change/loss

    Side Effects

    occasional.

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    0 Comments
    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
    nannyglo's Avatar

    Internal radiation

    Radiation

    have a little issue with swallowing now and then but nothing i cannot deal with. this was due to the area radiation.

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
    nannyglo's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    developed multiple clots in both lungs and legs. hospitalized. developed horrible neuropathy in R foot and hospitalized during whic...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • nannyglo
    • Experience with Multiple Myeloma
    over 1 year ago
    nannyglo's Avatar

    Surgery

    Procedure or Surgery

    large CA tumor on spine removed followed by 10 radiation txs. now on revlimid and valcade and in a strong remission.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. over 1 year ago
    RhodyRam18's Avatar

    Remission

    Celebration

    In multiple myeloma u are never cured so total remission is great let’s hope it last a looooog time

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    1 Comment
    • AlieRay
    • Experience with Multiple Myeloma
    over 1 year ago
    AlieRay's Avatar

    Just Diagnosed

    Oh No

    I was told Wednesday by my kidney Dr they found it

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    1 Comment
  2. over 1 year ago
  3. over 1 year ago
    Barbarajunee's Avatar

    External radiation

    Radiation

    Tumor pain

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • RayC
    • Experience with Multiple Myeloma
    almost 2 years ago
    RayC's Avatar

    Revlimid

    Drug or Chemo Therapy

    Fatigue

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Thankful
    • Experience with Multiple Myeloma
    about 2 years ago
    Thankful's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Received CR one year after SCT, now on maintenance revlimid (10 mg, 21 days on and 7 days off.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Thankful
    • Experience with Multiple Myeloma
    about 2 years ago
    Thankful's Avatar

    Auto Stem Cell Transplant

    Other Care

    Had auto SCT April 2016

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    0 Comments
    • Thankful
    • Experience with Multiple Myeloma
    about 2 years ago
    Thankful's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Initial therapy was CyborD (cytoxin, velcade, dex) Brought M spike down from 2.9 to 2. Switched to Velcade, dex, revlimid) brought...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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