• SueRose
    • Experience with Nodal Marginal Zone B-...
    about 2 years ago
    SueRose's Avatar

    The gym

    Other Care

    After a year of working I am finally able to get back to the gym. It has taken this long for my muscle pain to go down and be able t...

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    0 Comments
    • SueRose
    • Experience with Nodal Marginal Zone B-...
    about 2 years ago
    SueRose's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Port removed in June 2018!!!! Woo hoo! Much faster recovery than having it put in. No pain meds other than Advil needed, used some i...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Kal
    • Experience with Mantle Cell Lymphoma
    about 2 years ago
    Kal's Avatar

    Just Diagnosed

    Oh No

    i was diagnosed in August 2017 via a routine colonoscopy. Only symptoms have been occasional blood in the stool and having more freq...

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    0 Comments
  1. about 2 years ago
    Grigb2105's Avatar

    External radiation

    Radiation

    Tiredness at 9th treatment need 18

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. about 2 years ago
    Grigb2105's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Tepic is a 24 hr 5 day infusion retuxin was difficult but rest was tolerable constipation and hair loss

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. about 2 years ago
    Grigb2105's Avatar

    Biopsy of lower distal femur

    Procedure or Surgery

    Cancer has son on crutches

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. about 2 years ago
    Grigb2105's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    Stem cell Therapy dendritic cell Therapy CAAT Therapy hyperbaric chamber ionic foot bath vitamin infusion infrared therapy Laetrile ...

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    0 Comments
    • asn2212
    • Experience with Diffuse Large B-Cell L...
    about 2 years ago
    asn2212's Avatar

    CAR-T ?

    Decision Point

    Expenses, stage of disease, new country, no insurance - resulted in indecision and eventually not being able to go for it as disease...

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    0 Comments
    • asn2212
    • Experience with Diffuse Large B-Cell L...
    about 2 years ago
    asn2212's Avatar

    Surgery

    Procedure or Surgery

    Resection in Dec 2016, ileostomy in June 2018

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • asn2212
    • Experience with Diffuse Large B-Cell L...
    about 2 years ago
    asn2212's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Long term impact is bad, but short term impact was manageable

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Debech
    • Experience with Mantle Cell Lymphoma
    about 2 years ago
    Debech's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    1st treatment next week

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  5. about 2 years ago
    barbbigred's Avatar

    Remission

    Celebration

    In February 2018 I was deemed too high risk for stem cell transplant for mantle cell lymphoma. No further treatment options current...

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    0 Comments
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