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A trial was created solely for my case. "TEC" Treanda (Bendamustine), Etoposide and Carboplatin.
Clinical Trial
0 CommentsThis combination was stunningly effective. It eliminated two aggressive T-Cell Lymphomas at stage IV-B (24 tumors plus spleen and il...
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Chemotherapy
Drug or Chemo Therapy
Pralatrexate, a more potent cousin of Methotrexate. Grade 3 oral mucositis. PET/CT showed disease progression.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Chemotherapy
Drug or Chemo Therapy
Back on Belinostat. PET/CT showed disease progression.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Chemotherapy
Drug or Chemo Therapy
Had a single infusion of Belinostat (Beleodaq), but stopped it to enter a clinical trial.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
Cancer is back/Recurred
Oh No
0 CommentsRelapse also showed that it had mutated into two types of T-Cell Lymphoma: PTCL-NOS as well as AITL. WE increased the dosage of romi...
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Just Diagnosed
Oh No
0 CommentsI was shocked about my diagnoses. The docs moved very quick with tests, getting the port in and scheduling chemo.
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Implant chemotherapy port
Procedure or Surgery
I find it hard to believe no pain meds are given for recovery--even just a day's worth. Tylenol just took the edge off the pain. I...
0 CommentsWent as Expected: Neutral/NA Minimal Recovery: Disagree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Neutral/NA -
Chemotherapy
Drug or Chemo Therapy
Chemo begins on Aug 6th!
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
When to start treatment.
Decision Point
0 CommentsDiagnosed August 2017. Likely I had MCL for a couple of years prior. First treatment February 15, 2019. B/R for 4-6 months. If I...
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Chemotherapy
Drug or Chemo Therapy
My husband just completed his 1st round of chemo-Bendeka and immunotherapy-Rituxan. He was really tired after yesterday, took 6 hrs....
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
The gym
Other Care
0 CommentsAfter a year of working I am finally able to get back to the gym. It has taken this long for my muscle pain to go down and be able t...
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Implant chemotherapy port
Procedure or Surgery
Port removed in June 2018!!!! Woo hoo! Much faster recovery than having it put in. No pain meds other than Advil needed, used some i...
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Strongly Agree Minimal Side Effects: Strongly Agree Minimal Impact to Daily Life: Agree