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To radiate or not to radiate.... December 2017
Decision Point
0 CommentsStaging still inconclusive with so many areas of PET CT lit up several weeks after Rituxan. Drs suggested radiotherapy because they ...
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4x Rituxan
Drug or Chemo Therapy
October 2017 began series of 4x Rituxan infusions (once a week for four weeks). Drove myself there and back. Super sleepy from Benad...
0 CommentsEasy to Do: Agree Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Neutral/NA -
Surgery
Procedure or Surgery
Second bone marrow biopsy. This time, CT guided. BTW, it sucked! But good results, sort of... Sarcoidosis confirmed, no lymphoma in ...
0 CommentsWent as Expected: Neutral/NA Minimal Recovery: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
Surgery
Procedure or Surgery
Bone marrow biopsy. Staging purposes... PET CT lit up areas in chest and bones, including pelvis. Previously suspected pulmonary sar...
0 CommentsWent as Expected: Disagree Minimal Recovery: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
Surgery
Procedure or Surgery
Biopsy July 30th, 2017. Excision of 2 enlarged nodes measuring about 3cm each.
0 CommentsWent as Expected: Agree Minimal Recovery: Neutral/NA Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
Just Diagnosed
Oh No
0 CommentsI found a lump in my neck on June 4th, 2017. The events that followed included prednisone, bloods, a CT scan after seeing a few diff...
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Chemotherapy
Drug or Chemo Therapy
Active treatment of Bendamustine and Ritximab injection. Completed 5of 6 28 day cycles. A lot of minor side effects (itchy skin, dry...
0 CommentsEasy to Do: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
Remission
Celebration
0 CommentsI was notified after my scans in late November 2017 that I was in FULL REMISSION...tears of joy soon followed.
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Other Care
0 CommentsHad R-Epock 6 rounds 6 days in hospital each round. 132 Chemo treatments total. Now have had 2 Retuxin Infusions, need 2 yrs worth...
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to get a second opion and the biopsys I had to decide if I wanted done.
Decision Point
0 CommentsFeeling very anxious and in denial of it alll
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Just Diagnosed
Oh No
0 CommentsSuch a overwhelming feelings of death and pain shocked out of my mind
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Chemotherapy
Drug or Chemo Therapy
2009 - R-CHOP, 2016 - Bendamustine & Rituximab Now in remission but taking Revlamid 15mg, 21 days on, 7 days off.
0 CommentsEasy to Do: Agree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree