-
- chrismarler4
- Experience with Chronic Lymphocyt...
Quarterly blood tests.
Other Care
Current stage zero. Only being monitored by frequent blood tests.
-
- Momma4t
- Experience with Non-Hodgkin Lymphoma (...
Low white blood cell counts (neutropenia)
Side Effects
Allergic reaction, fatigue, low blood counts,
-
- Momma4t
- Experience with Non-Hodgkin Lymphoma (...
External radiation
Radiation
Just caused fatigue after treatment.
Painless Experience: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Neutral/NA -
- Momma4t
- Experience with Non-Hodgkin Lymphoma (...
Chemotherapy
Drug or Chemo Therapy
Side effects caused severe hives and had to stop after 4 instead of 6 but am not showing any signs as of now.
Easy to Do: Neutral/NA Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree -
- MarciaLynn
- Experience with Diffuse Large B-Cel...
Great PET scan results!
Celebration
PET Scan in Feb. 2018 after completion of chemo showed previous lymphoma tumors were gone.
-
- po18guy
- Experience with Angioimmunoblastic T-C...
Cancer is back/Recurred
Oh No
Bone marrow biopsy reveals that MDS has recurred and is at the MRD (Minimum Residual Disease) level of 2.3% blast cells.
-
- po18guy
- Experience with Angioimmunoblastic T-C...
Chemotherapy
Drug or Chemo Therapy
Consolidation chemotherapy to kill any remaining lymphoma cells.
Easy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- po18guy
- Experience with Angioimmunoblastic T-C...
Moderate intensity haploidentical allogeneic stem cell transplant.
Procedure or Surgery
30% mortality within the first three years. Acute, then chronic graft-versus-host-disease.
Went as Expected: Agree Minimal Recovery: Strongly Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
- po18guy
- Experience with Angioimmunoblastic T-C...
External radiation
Radiation
Total body irradiation (TBI) to kill my failed marrow.
Painless Experience: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- po18guy
- Experience with Angioimmunoblastic T-C...
Chemotherapy
Drug or Chemo Therapy
Transplant conditioning chemo received at 10X normal dosing.
Easy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- po18guy
- Experience with Angioimmunoblastic T-C...
Stem cell transplant. We had exhausted all lymphoma drugs and after two relapses and a muation/transformation, the liklihood of relapse was great.
Decision Point
In 2009, there was no match found for a transplant in the world donor registry. In 2015, there was still no match. No siblings. My t...
-
- po18guy
- Experience with Angioimmunoblastic T-C...
A trial was created solely for my case. "TEC" Treanda (Bendamustine), Etoposide and Carboplatin.
Clinical Trial
This combination was stunningly effective. It eliminated two aggressive T-Cell Lymphomas at stage IV-B (24 tumors plus spleen and il...