1. about 4 years ago
    MrsGilbert's Avatar

    External radiation

    Radiation

    I received six weeks of radiation to my head. I lost what hair I had grown, my eyebrows, my eye lashes, and I had a terrible burn on...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  2. about 4 years ago
    MrsGilbert's Avatar

    Surgery

    Procedure or Surgery

    I had brain surgery to remove most of the brain tumor but they were not able to get all of it. I stayed one night in the hospital an...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  3. about 4 years ago
    MrsGilbert's Avatar

    To quit my studies

    Decision Point

    At the time I was a full time student in college and it was spring. I was so close to being done and I did attempt to finish online ...

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    0 Comments
  4. about 4 years ago
    MrsGilbert's Avatar

    Cancer is back/Recurred

    Oh No

    March 17, 2015 I went in for my routine mri and found out my cancer was back and it was more aggressive. I was scheduled for brain s...

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    1 Comment
    • dabobo
    • Experience with Brain and Spinal Cord T...
    over 4 years ago
    dabobo's Avatar

    Finished treatment

    Celebration

    Next week, I will have finished 6 A/C and 12 Taxol.

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    0 Comments
    • dabobo
    • Experience with Brain and Spinal Cord T...
    over 4 years ago
    dabobo's Avatar

    To live or die.

    Decision Point

    My mom choose to make me live and for that I'am grateful but unsure if I would go through this experience again.

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    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 4 years ago
    Lizabeth's Avatar

    Lost loved one

    Loss

    My husband, best friend and fellow caregiver, who was fighting his own battle with 2 cancers, made it through all of my treatment, ...

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    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 4 years ago
    Lizabeth's Avatar

    Hair loss (alopecia)

    Side Effects

    It came out in all the areas where the radiation was aimed. Luckily, no burns. I used aloe Vera gel, right from the plant . Had to s...

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    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 4 years ago
    Lizabeth's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Doctor was surprised that I reacted with such low platelet count so soon after I started chemo

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    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 4 years ago
    Lizabeth's Avatar

    External radiation

    Radiation

    I had 6 weeks of maximum targeted radiation to my brain. I have the exact name available if needed

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 4 years ago
    Lizabeth's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I did 11 months of Temodar. 5 days each month of taking orally, the horse pills. -

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 4 years ago
    Lizabeth's Avatar

    Surgery

    Procedure or Surgery

    I had a resection on November 12th, 2012 to remove the affected area of the brain. Tumor sits in the perietal and occipital lobes ...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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