• marnie
    • Experience with Sarcoma - Adult Soft Ti...
    about 5 years ago
    marnie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    It looks like it never left even after surgery. My husband and I haven't been very nice to each other and it seems we are very edgy ...

    Read More

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  1. about 5 years ago
    revlag51's Avatar

    Dealing with each individual site as it occurs

    Other Care

    I don't know whether or not I have neurofibromosis or NF 1 or 2? I have had a parotid tumour removed (95% benign) and have a small m...

    Read More

    0 Comments
    • wenblown
    • Experience with Angiosarcomas, Sarcoma
    about 5 years ago
    wenblown's Avatar

    Surgery

    Procedure or Surgery

    Tumor 7.1 cm tumor removed and path report shows <1% angio cells left in tumor bed

    Read More

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • veesandee
    • Experience with Sarcoma - Adult Soft...
    over 5 years ago
    veesandee's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    MRI says that IT is in my spinel cord, c4,c5,c6. IT has been eating my bones and compress my nerves. I want this out of me. Surge...

    Read More

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. over 5 years ago
    megatherian's Avatar

    Surgery

    Procedure or Surgery

    This post is to note that I had a suspicious mass removed from my right thigh last week. The pathology came back and I was diagnose...

    Read More

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Eye Tearing

    Side Effects

    My eyes have been tearing for the last 2 months which makes it look like I'm always crying. It is getting worse now, it is daily. ...

    Read More

    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    The actual implant procedure was no big deal, but the pain afterwards and the feeling of having a strange object in me is weird. I ...

    Read More

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Nail Changes

    Side Effects

    Both my fingernails and toenails are affected by the chemo. My fingernails are worse. They are on their way of falling off. It lo...

    Read More

    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Fatigue (tiredness)

    Side Effects

    As I get further into my treatment, I feel like I'm carrying 50 pound weights on my legs. They tell me it's fatigue.

    Read More

    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Taste change/loss

    Side Effects

    For the first few days after chemo everything tastes like cardboard! I do have an appetite, but can't eat because of this.

    Read More

    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    External radiation

    Radiation

    I had radiation treatment for 6 weeks. Everything was fine until my skin started to breakdown which happened around the last 3 week...

    Read More

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. over 5 years ago
    StephenE's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am taking gemcidobene (sp?)

    Read More

    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  1. 1
  2. 2
  3. 7
  4. 8
  5. 9
  6. 10
  7. 12
  8. 14
  9. 15
  10. 16
  11. 17
  12. 83
  13. 84