• JRitter
    • Experience with Fibrosarcoma, Adult So...
    over 5 years ago
    JRitter's Avatar

    External radiation

    Radiation

    I had 28 treatments. Because I had nerve damage from the surgery, I really didn't experience a burn, but my skin did turn brown. I...

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • JRitter
    • Experience with Fibrosarcoma, Adult So...
    over 5 years ago
    JRitter's Avatar

    Surgery

    Procedure or Surgery

    At first, the recovery was hard...I could't lift my left leg. But as time when by, things have improved. The scar still hurts mont...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. over 5 years ago
    HygienistMom's Avatar

    External radiation

    Radiation

    Just completed 33 radiation treatments following removal of a 3.4 cm synovial sarcoma on my right ankle. Tolerated the procedure we...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • marnie
    • Experience with Sarcoma - Adult Soft Ti...
    over 5 years ago
    marnie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    It looks like it never left even after surgery. My husband and I haven't been very nice to each other and it seems we are very edgy ...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. over 5 years ago
    revlag51's Avatar

    Dealing with each individual site as it occurs

    Other Care

    I don't know whether or not I have neurofibromosis or NF 1 or 2? I have had a parotid tumour removed (95% benign) and have a small m...

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    0 Comments
    • wenblown
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    wenblown's Avatar

    Surgery

    Procedure or Surgery

    Tumor 7.1 cm tumor removed and path report shows <1% angio cells left in tumor bed

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • veesandee
    • Experience with Sarcoma - Adult Soft...
    over 5 years ago
    veesandee's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    MRI says that IT is in my spinel cord, c4,c5,c6. IT has been eating my bones and compress my nerves. I want this out of me. Surge...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Eye Tearing

    Side Effects

    My eyes have been tearing for the last 2 months which makes it look like I'm always crying. It is getting worse now, it is daily. ...

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    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    The actual implant procedure was no big deal, but the pain afterwards and the feeling of having a strange object in me is weird. I ...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Nail Changes

    Side Effects

    Both my fingernails and toenails are affected by the chemo. My fingernails are worse. They are on their way of falling off. It lo...

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    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Fatigue (tiredness)

    Side Effects

    As I get further into my treatment, I feel like I'm carrying 50 pound weights on my legs. They tell me it's fatigue.

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    0 Comments
    • linlou
    • Experience with Angiosarcomas, Sarcoma
    over 5 years ago
    linlou's Avatar

    Taste change/loss

    Side Effects

    For the first few days after chemo everything tastes like cardboard! I do have an appetite, but can't eat because of this.

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    0 Comments
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