• Susan50
    • Experience with Squamous Cell Carcinom...
    11 months ago
    Susan50's Avatar

    Just Diagnosed

    Oh No

    Me and my 3 children went to first appt. I was in complete shock for all of us.

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    0 Comments
    • goodtimes
    • Experience with Adenocarcinoma, Not ...
    11 months ago
    goodtimes' Avatar

    Biopsy

    Decision Point

    I will have a core needle Biopsy but not a tissue as I do not want any treatment except lumpectomy as i have an immune disorder and ...

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    0 Comments
    • Barefoot
    • Experience with Adenocarcinoma, Esoph...
    11 months ago
    Barefoot's Avatar

    endoscopy

    Procedure or Surgery

    one surgeon say it's gone now....another says, "Not so fast!"

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Barefoot
    • Experience with Adenocarcinoma, Esoph...
    11 months ago
  1. 11 months ago
    chrismarler4's Avatar

    Internal radiation

    Radiation

    These treatments literally whipe’s you out. Astronomically increasing staff infection rates. I felt like I should have been a bubb...

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • JasmineG
    • Experience with Invasive, Squamous Ce...
    11 months ago
    JasmineG's Avatar

    5 years since diagnosis

    Milestones

    Cancer free, but will never swallow again. WORD OD ADVICE. no matter the pain, or taste. Keep,swallowing in order to keep those musc...

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    0 Comments
    • Susan50
    • Experience with Squamous Cell Carcinom...
    11 months ago
    Susan50's Avatar

    Operation not possible

    Decision Point

    Now I'm terminal so I need decide if I want Radiotherapy

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    3 Comments
    • mr114750
    • Experience with Lymphoma, Oral Cavity...
    11 months ago
    mr114750's Avatar

    Jaw bone damage (osteonecrosis)

    Side Effects

    My osteonecrosis is in my cervical spine. Very rare to have this type of side effect of radition.

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    0 Comments
    • mr114750
    • Experience with Lymphoma, Oral Cavity...
    11 months ago
    mr114750's Avatar

    External radiation

    Radiation

    This had to be the worst experience as my neck was burned and my throat was even worse, I could not eat and had to have a feeding tube

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    5 Comments
    • Lonnie1950
    • Experience with Head & Neck/Throat ...
    11 months ago
    Lonnie1950's Avatar

    Opdivo/immutherapy drug

    Drug or Chemo Therapy

    Only had one infusion. No side effects so far

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Lonnie1950
    • Experience with Head & Neck/Throat ...
    11 months ago
    Lonnie1950's Avatar

    Cancer is back/Recurred

    Oh No

    Intense chemo did not work. Put on Opdivo

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    0 Comments
    • Lonnie1950
    • Experience with Head & Neck/Throat ...
    11 months ago
    Lonnie1950's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Hospitalized 4 days with 3 types of chemo 24 hours a day. Did this once a month for three months

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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