• ShariSLL
    • Experience with Chronic Lymphocytic L...
    about 3 years ago
    ShariSLL's Avatar

    Biopsy

    Procedure or Surgery

    Didn't take pain killers given; back to work ~ 1 hr. after being awakened.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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    • yorhonda
    • Experience with Acute Myeloid Leukemi...
    about 3 years ago
    yorhonda's Avatar

    Birthday

    Celebration

    I just celebrated my 60th birthday!! I am so blessed! G-d had a plan for me because I was not done. I started working with children ...

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  1. about 3 years ago
    Meenubhandari's Avatar

    Gleevac 400mg

    Drug or Chemo Therapy

    Having muscle cramps n acidity

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • MedAssist
    • Experience with Chronic Myeloid Leuk...
    about 3 years ago
    MedAssist's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Oral chemo daily for life, side effects take time to wane. Its been hard.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • MedAssist
    • Experience with Chronic Myeloid Leuk...
    about 3 years ago
    MedAssist's Avatar

    bone marrow biopsy

    Procedure or Surgery

    My sciatic took quite the hit,which is not the norm. It took a while in PT to recover.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • MedAssist
    • Experience with Chronic Myeloid Leuk...
    about 3 years ago
    MedAssist's Avatar

    dx

    Oh No

    Dx of CML via CBC & Lith panel

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    • WVgirl2424
    • Experience with AML with Changes in...
    about 3 years ago
    WVgirl2424's Avatar

    Anniversary

    Celebration

    7/5/2016 5 years since stem cell transplant. Last year I walk/ran over 1000 miles. Even with GVHD, eating healthy, staying fit, gett...

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    • WVgirl2424
    • Experience with AML with Changes in...
    about 3 years ago
    WVgirl2424's Avatar

    Chronic GVHD

    Oh No

    Told last year that my GVHD is chronic and treatment will continue monthly until they stop working, then there is nothing they can d...

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  2. over 3 years ago
    junebugg1961's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Side effects

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. over 3 years ago
    junebugg1961's Avatar

    When it was time to go back to the doctor.

    Decision Point

    October 2015 I went back in for blood work. However I went out of town to my original doctor that I trust with my life. Started chem...

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  4. over 3 years ago
    junebugg1961's Avatar

    I chose to walk away from chemo November 2014 because I wasn't getting better and my liver was suffering. Also many side effects.

    Decision Point

    I was seeing a onco that did not listen or take proper care of my other health issues. I was getting sicker.

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    • PickyNikki
    • Experience with Acute Lymphocytic L...
    over 3 years ago
    PickyNikki's Avatar

    Decision Point

    Emotionally broken beyond repair. Alone and cannot handle treatment alone. Ive been in constant consistent pain for the last 8 years.

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    0 Comments
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