• Sdk5035
    • Experience with Extra-Skeletal, High-G...
    about 6 years ago
    Sdk5035's Avatar

    Internal radiation

    Radiation

    Radiation to my upper right arm really singed my shoulder, elbow, and the skin. I needed a skin graft. It will never recover.

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    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • gboll
    • Experience with Low-Grade, Osteosarcoma
    about 6 years ago
    gboll's Avatar

    Money

    Oh No

    tuition@ fees

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    0 Comments
  1. over 6 years ago
    contheisland's Avatar

    Body part/function

    Loss

    Spouse lost eyesight

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    0 Comments
  2. over 6 years ago
    CopingWithBigC's Avatar

    Remission

    Celebration

    4 years in part remission this year!!

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    0 Comments
    • rokjhn
    • Experience with Malignant Fibrous Histi...
    over 6 years ago
    rokjhn's Avatar

    External radiation

    Radiation

    Had 25 doses to my calf with no real side effects until the week after finishing. It was at that point that the radiated area start...

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • rokjhn
    • Experience with Malignant Fibrous Histi...
    over 6 years ago
    rokjhn's Avatar

    Anti nausea medication protocol

    Clinical Trial

    Fosaprepitant is drug commonly given before and after chemo to help prevent nausea and vomiting. The Clinical trial involved getti...

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    0 Comments
    • rokjhn
    • Experience with Malignant Fibrous Histi...
    over 6 years ago
    rokjhn's Avatar

    Constipation

    Side Effects

    Constipation that led to major hemorrhoid issues and pain like I've never experienced. In hindsight I should have been taking stoo...

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    0 Comments
    • rokjhn
    • Experience with Malignant Fibrous Histi...
    over 6 years ago
    rokjhn's Avatar

    Chemo brain

    Side Effects

    Chemo brain is the real deal and I can describe it as being in a fog. I couldn't concentrate on anything for very long, which made ...

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    • rokjhn
    • Experience with Malignant Fibrous Histi...
    over 6 years ago
    rokjhn's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemotherapy was the hardest thing I've ever had to experience, that being said, doctors indicated that I handled it remarkably well...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • rokjhn
    • Experience with Malignant Fibrous Histi...
    over 6 years ago
    rokjhn's Avatar

    Misdiagnosed

    Oh No

    Mass in my calf was thought to be a simple hematoma and surgery was scheduled for removal. However, pathology diagnosed MFH and my ...

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  3. over 6 years ago
    vizslagirl's Avatar

    i have a new oncologist i think...

    Decision Point

    i think i have found a new oncologist who is going to thoroughly reassess my cancer, come up with a gameplan & COMMUNICATE it to me....

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  4. over 6 years ago
    vizslagirl's Avatar

    Internal radiation

    Radiation

    fatigue & mind fogginess on course as expected for radition treatment to head. no surprises, just resting & coming off decadron........

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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