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- po18guy
- Experience with Angioimmunoblastic T-C...
Chemotherapy
Drug or Chemo Therapy
Pralatrexate, a more potent cousin of Methotrexate. Grade 3 oral mucositis. PET/CT showed disease progression.
Easy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- po18guy
- Experience with Angioimmunoblastic T-C...
Chemotherapy
Drug or Chemo Therapy
Back on Belinostat. PET/CT showed disease progression.
Easy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- po18guy
- Experience with Angioimmunoblastic T-C...
Chemotherapy
Drug or Chemo Therapy
Had a single infusion of Belinostat (Beleodaq), but stopped it to enter a clinical trial.
Easy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- po18guy
- Experience with Angioimmunoblastic T-C...
Cancer is back/Recurred
Oh No
Relapse also showed that it had mutated into two types of T-Cell Lymphoma: PTCL-NOS as well as AITL. WE increased the dosage of romi...
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- kicks
- Experience with Follicular Lymphoma
Just Diagnosed
Oh No
I was shocked about my diagnoses. The docs moved very quick with tests, getting the port in and scheduling chemo.
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- kicks
- Experience with Follicular Lymphoma
Implant chemotherapy port
Procedure or Surgery
I find it hard to believe no pain meds are given for recovery--even just a day's worth. Tylenol just took the edge off the pain. I...
Went as Expected: Neutral/NA Minimal Recovery: Disagree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Neutral/NA -
- kicks
- Experience with Follicular Lymphoma
Chemotherapy
Drug or Chemo Therapy
Chemo begins on Aug 6th!
Easy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- Kal
- Experience with Mantle Cell Lymphoma
When to start treatment.
Decision Point
Diagnosed August 2017. Likely I had MCL for a couple of years prior. First treatment February 15, 2019. B/R for 4-6 months. If I...
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- Debech
- Experience with Mantle Cell Lymphoma
Chemotherapy
Drug or Chemo Therapy
My husband just completed his 1st round of chemo-Bendeka and immunotherapy-Rituxan. He was really tired after yesterday, took 6 hrs....
Easy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- SueRose
- Experience with Nodal Marginal Zone B-...
The gym
Other Care
After a year of working I am finally able to get back to the gym. It has taken this long for my muscle pain to go down and be able t...
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- SueRose
- Experience with Nodal Marginal Zone B-...
Implant chemotherapy port
Procedure or Surgery
Port removed in June 2018!!!! Woo hoo! Much faster recovery than having it put in. No pain meds other than Advil needed, used some i...
Went as Expected: Strongly Agree Minimal Recovery: Strongly Agree Minimal Side Effects: Strongly Agree Minimal Impact to Daily Life: Agree -
- Kal
- Experience with Mantle Cell Lymphoma
Just Diagnosed
Oh No
i was diagnosed in August 2017 via a routine colonoscopy. Only symptoms have been occasional blood in the stool and having more freq...