• palen2be
    • Experience with Non-Hodgkin Lymphoma ...
    almost 2 years ago
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    Just Diagnosed

    Oh No

    I found out July 13th the tumor next to my spine is cancer.

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    3 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    almost 2 years ago
    Joshwa's Avatar

    Cancer has spread/Metastasized

    Oh No

    May 2018 and I started to feel funny, bloating, cramps in my upper abdomen. It persisted for a few weeks and I contacted my PCP... E...

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    0 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    almost 2 years ago
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    External radiation

    Radiation

    Difinitive Radiotherapy December 18th 2017 to January 8th 2018, roughly... Had my mask made the same day we decided to go for radia...

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    almost 2 years ago
    Joshwa's Avatar

    To radiate or not to radiate.... December 2017

    Decision Point

    Staging still inconclusive with so many areas of PET CT lit up several weeks after Rituxan. Drs suggested radiotherapy because they ...

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    0 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    almost 2 years ago
    Joshwa's Avatar

    4x Rituxan

    Drug or Chemo Therapy

    October 2017 began series of 4x Rituxan infusions (once a week for four weeks). Drove myself there and back. Super sleepy from Benad...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    almost 2 years ago
    Joshwa's Avatar

    Surgery

    Procedure or Surgery

    Second bone marrow biopsy. This time, CT guided. BTW, it sucked! But good results, sort of... Sarcoidosis confirmed, no lymphoma in ...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    almost 2 years ago
    Joshwa's Avatar

    Surgery

    Procedure or Surgery

    Bone marrow biopsy. Staging purposes... PET CT lit up areas in chest and bones, including pelvis. Previously suspected pulmonary sar...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    almost 2 years ago
    Joshwa's Avatar

    Surgery

    Procedure or Surgery

    Biopsy July 30th, 2017. Excision of 2 enlarged nodes measuring about 3cm each.

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Joshwa
    • Experience with Follicular Lymphoma
    almost 2 years ago
    Joshwa's Avatar

    Just Diagnosed

    Oh No

    I found a lump in my neck on June 4th, 2017. The events that followed included prednisone, bloods, a CT scan after seeing a few diff...

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    0 Comments
    • Helen50
    • Experience with Non-Hodgkin Lymphoma (...
    almost 2 years ago
    Helen50's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Active treatment of Bendamustine and Ritximab injection. Completed 5of 6 28 day cycles. A lot of minor side effects (itchy skin, dry...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • jomak
    • Experience with Follicular Lymphoma
    almost 2 years ago
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    Remission

    Celebration

    I was notified after my scans in late November 2017 that I was in FULL REMISSION...tears of joy soon followed.

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    0 Comments
    • Ivey
    • Experience with Non-Hodgkin Lymphoma (NHL)
    almost 2 years ago
    Ivey's Avatar

    Other Care

    Had R-Epock 6 rounds 6 days in hospital each round. 132 Chemo treatments total. Now have had 2 Retuxin Infusions, need 2 yrs worth...

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    0 Comments
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