• Lizabeth
    • Experience with Oligodendroglioma
    over 4 years ago
    Lizabeth's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I did 11 months of Temodar. 5 days each month of taking orally, the horse pills. -

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • Lizabeth
    • Experience with Oligodendroglioma
    over 4 years ago
    Lizabeth's Avatar

    Surgery

    Procedure or Surgery

    I had a resection on November 12th, 2012 to remove the affected area of the brain. Tumor sits in the perietal and occipital lobes ...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 4 years ago
    Lizabeth's Avatar

    Surgery

    Procedure or Surgery

    Had a resection of the brain to remove cancerous part of the brain, couldn't get it all because it goes to center of the brain. It l...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • lostwife47
    • Experience with High-Grade Astrocyt...
    over 4 years ago
    lostwife47's Avatar

    External radiation

    Radiation

    has anybody else experienced nodding off, almost narcolepsy like, all day long after radiation/chemo treatment..Husband will just no...

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  1. over 4 years ago
    KiVier2011's Avatar

    Surgery

    Procedure or Surgery

    Total resection was impossible. Treated with a very high-dose radiation during operation. CSF leak forced bed rest for more than a m...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Ioskeha
    • Experience with Schwannoma (Neurilemoma)
    over 4 years ago
    Ioskeha's Avatar

    Nothing done yet.

    Procedure or Surgery

    This tumor has been in my head for years. Even before I had brain surgery to try to remove the Muudlloblastoma. It's thiny and very ...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Ioskeha
    • Experience with Schwannoma (Neurilemoma)
    over 4 years ago
    Ioskeha's Avatar

    My doctors found another tumor in my head.

    Oh No

    It's called Schawnnom, and it's locate on my left ear drum.

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    0 Comments
    • Ioskeha
    • Experience with Medulloblastoma
    over 4 years ago
    Ioskeha's Avatar

    Cancer is shrinking

    Celebration

    I survived 36 years with Medulloblastoma. Never give up the fight!

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    • Ioskeha
    • Experience with Medulloblastoma
    over 4 years ago
    Ioskeha's Avatar

    Body part/function

    Loss

    The tumor that was removed from by brain was compared to a softball in size. It had enveloped my Cerebellum, which was removed with ...

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    • Ioskeha
    • Experience with Medulloblastoma
    over 4 years ago
    Ioskeha's Avatar

    Bladder problems

    Side Effects

    I have a lot of problems now. Thermal, speech, hearing, battery, and digestive problems

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    • Ioskeha
    • Experience with Medulloblastoma
    over 4 years ago
    Ioskeha's Avatar

    External radiation

    Radiation

    My Proton Therapy was really intense. I had to go everyday for six weeks, an hour and a half at a time. I had my head, upper, middle...

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Ioskeha
    • Experience with Medulloblastoma
    over 4 years ago
    Ioskeha's Avatar

    Surgery

    Procedure or Surgery

    My recovery took less then a year. I live with a lot of problems now due to the tumor removal.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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