• RubyCat
    • Experience with Brain and Spinal Cord ...
    over 5 years ago
    RubyCat's Avatar

    to have surgery soon or delay surgery for six months

    Decision Point

    The idea of waiting six months and risk having damage that may not return to normal spurred me to have surgery soon.

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    0 Comments
  1. over 5 years ago
    valleyofroses' Avatar

    Procedure or Surgery

    They removed part of my skull

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. over 5 years ago
    MrsGilbert's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I'm on three different types of chemo and when I'm on them it greatly affects my day to day living. I have extreme fatigue, mental f...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    2 Comments
  3. over 5 years ago
    MrsGilbert's Avatar

    External radiation

    Radiation

    I received six weeks of radiation to my head. I lost what hair I had grown, my eyebrows, my eye lashes, and I had a terrible burn on...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  4. over 5 years ago
    MrsGilbert's Avatar

    Surgery

    Procedure or Surgery

    I had brain surgery to remove most of the brain tumor but they were not able to get all of it. I stayed one night in the hospital an...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  5. over 5 years ago
    MrsGilbert's Avatar

    To quit my studies

    Decision Point

    At the time I was a full time student in college and it was spring. I was so close to being done and I did attempt to finish online ...

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    0 Comments
  6. over 5 years ago
    MrsGilbert's Avatar

    Cancer is back/Recurred

    Oh No

    March 17, 2015 I went in for my routine mri and found out my cancer was back and it was more aggressive. I was scheduled for brain s...

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    1 Comment
    • dabobo
    • Experience with Brain and Spinal Cord T...
    over 5 years ago
    dabobo's Avatar

    Finished treatment

    Celebration

    Next week, I will have finished 6 A/C and 12 Taxol.

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    0 Comments
    • dabobo
    • Experience with Brain and Spinal Cord T...
    over 5 years ago
    dabobo's Avatar

    To live or die.

    Decision Point

    My mom choose to make me live and for that I'am grateful but unsure if I would go through this experience again.

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    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 5 years ago
    Lizabeth's Avatar

    Lost loved one

    Loss

    My husband, best friend and fellow caregiver, who was fighting his own battle with 2 cancers, made it through all of my treatment, ...

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    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 5 years ago
    Lizabeth's Avatar

    Hair loss (alopecia)

    Side Effects

    It came out in all the areas where the radiation was aimed. Luckily, no burns. I used aloe Vera gel, right from the plant . Had to s...

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    0 Comments
    • Lizabeth
    • Experience with Oligodendroglioma
    over 5 years ago
    Lizabeth's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Doctor was surprised that I reacted with such low platelet count so soon after I started chemo

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    0 Comments
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