• starry1982
    • Experience with Synovial Sarcoma, A...
    about 6 years ago
    starry1982's Avatar

    Initial diagnosis

    Oh No

    Full Pathology came back from my surgery, and staining pathology showed that the tumor was actually malignant. Diagnosed Synovial S...

    Read More

    0 Comments
    • starry1982
    • Experience with Synovial Sarcoma, A...
    about 6 years ago
    starry1982's Avatar

    Surgery

    Procedure or Surgery

    June 25, 2014. Had initial surgery to remove mass - originally suspected to be a benign soft tissue mass. In-surgery cross-sectiona...

    Read More

    Went as Expected: Disagree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • KiscoKid
    • Experience with Fibrosarcoma, Adult S...
    about 6 years ago
    KiscoKid's Avatar

    Problem with doctor

    Oh No

    The oncological surgeon was not a good communicator, expectations and collateral issues were not explained, the hospital was/is diso...

    Read More

    0 Comments
    • KiscoKid
    • Experience with Fibrosarcoma, Adult S...
    about 6 years ago
    KiscoKid's Avatar

    External radiation

    Radiation

    I'm being treated with IMRT radiation therapy at Memorial Sloane Kettering (MSK) in NYC, so far so good!

    Read More

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • KiscoKid
    • Experience with Fibrosarcoma, Adult S...
    about 6 years ago
    KiscoKid's Avatar

    Surgery

    Procedure or Surgery

    I did not take the surgery seriously enough when deciding which hospital to go with, I was lulled / lulled myself into thinking I h...

    Read More

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • crudd123
    • Experience with Sarcoma - Adult Soft ...
    about 6 years ago
    crudd123's Avatar

    Other Care

    Having genetic testing done! They said the results will be in about 3-4 weeks from now!

    Read More

    1 Comment
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    about 6 years ago
    cathy1967's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Easier than radiation- 72 hour nausea medication with chemo -can only have 5 -6 treatments with this drug - it causes heart issues

    Read More

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    about 6 years ago
    cathy1967's Avatar

    External radiation

    Radiation

    10 treatments-radiation fine -side effects awful- tired,nausea and no appetite

    Read More

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. about 6 years ago
    explorer25m's Avatar

    I decided to stop my current medication because it made me too miserable and sick to want to live through it. Im done with medications

    Decision Point

    Ive come to a point where my Dr. currently has no more meds for me to try and after almost 7 years, im done with medications that ma...

    Read More

    2 Comments
  2. about 6 years ago
    explorer25m's Avatar

    Lost loved one

    Loss

    My best friend and the one person I shared me trials and tribulations of cancer with died of brain cancer last summer

    Read More

    0 Comments
  3. about 6 years ago
    Beckyhughes' Avatar

    Misdiagnosed

    Oh No

    For almost a year, we were told the pain stemmed from a muscle spasm. Five days ago my life turned upside down when an MRI showed ca...

    Read More

    0 Comments
    • PattiJ
    • Experience with Fibrosarcoma, Adult Sof...
    about 6 years ago
    PattiJ's Avatar

    External radiation

    Radiation

    I finished radiation therapy 2 weeks ago. It was a 7 week course of IMRT. I was hospitalized durin treatment for 3 days because of d...

    Read More

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  1. 1
  2. 2
  3. 8
  4. 9
  5. 10
  6. 11
  7. 13
  8. 15
  9. 16
  10. 17
  11. 18
  12. 83
  13. 84