• Francyn
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    Francyn's Avatar

    Steroid injection

    Procedure or Surgery

    MRI showed arthritis between L3 and L4 which could be the cause of leg pain. Said it would take several days for the steroids to sta...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Francyn
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    Francyn's Avatar

    Ureter stents

    Procedure or Surgery

    Through CT scan, they found the tumor had grown it was pressing against my ureter. The kidneys were unable to empty into the bladder...

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Francyn
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    Francyn's Avatar

    Hospitalization

    Oh No

    Pain was so great that I could not get comfortable. Like pain that sayin pain was so great that I could not get comfortable. Leg pa...

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    0 Comments
    • pattyc
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    pattyc's Avatar

    Hospitalization

    Other Care

    Went to the hospital because I woke with a fever and confusion. Doc thought I presented as beginning symptoms of sepsis but they cou...

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    0 Comments
    • pattyc
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    pattyc's Avatar

    A clear scan?!

    Celebration

    I'm still recovering from colitis and will need to follow up with GI to figure out where I'm at, but two days ago I got results from...

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    1 Comment
    • pattyc
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    pattyc's Avatar

    colitis

    Side Effects

    Developed colitis while on Keytruda and had to stop treatment. On meds for colitis right now and still healing. In a couple of weeks...

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    0 Comments
    • pattyc
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    pattyc's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Keytruda was the immunotherapy I was on. The anxiety leading up to it was hard - infusion #1 was exhausting probably because of that...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • suebond
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    suebond's Avatar

    Pembro/pd-1 immunotherapy

    Clinical Trial

    I was able to start the expanded access trial on July 8, 2014. I received 2 doses and a PET scan was administered. It showed a node ...

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    0 Comments
    • suebond
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    suebond's Avatar

    The tumors were contaminated and I was not eligable for the trial.

    Oh No

    NIH was sarting a new trial. They would take the red blood cells, modify them, grow more of the modified cells and then give them ba...

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    0 Comments
    • suebond
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    suebond's Avatar

    Surgery to remove cancer that has spread

    Procedure or Surgery

    My surgery was scheduled for a Wednesday and I was admitted to NIHCC on Sunday. I had a PET scan Monday morning. Monday afternoon th...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • suebond
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    suebond's Avatar

    TIL

    Clinical Trial

    My oncologist sent me to NIH in Bethesda, MD to see if I qualified for a clinical trial. After review of my records and some tests I...

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    0 Comments
    • suebond
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    suebond's Avatar

    IL-2 did not work

    Oh No

    Scans showed nodules grew after IL-2 infusions.

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    0 Comments
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