• mema
    • Experience with Osteosarcoma (Also called...
    over 6 years ago
    mema's Avatar

    Surgery

    Procedure or Surgery

    my husband had to have a hemi-pelvectomy, total amputation of his left leg, hip and half of is pelvis.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  1. over 6 years ago
    contheisland's Avatar

    Cancer is back/Recurred

    Oh No

    Don't have the results from MRI just the latest catscan and they've found some tumors under the skin in the lymph nodes and we're sc...

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    0 Comments
  2. over 6 years ago
    contheisland's Avatar

    Money

    Oh No

    Money is very tight right now and we have no vehicle and I'm on the internet till wee hours of the morning looking for someone or a...

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    0 Comments
  3. over 6 years ago
    contheisland's Avatar

    Anniversary

    Celebration

    Not quite, got married 9-29-12 and our whole story was in the Daily News here locally. We've had quite a journey and now this!

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    0 Comments
  4. over 6 years ago
    contheisland's Avatar

    Hospice

    Other Care

    We are under Hospice now and it's not bad although they only come here once a week and check the usual stuff and they're gone. I'm ...

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    0 Comments
  5. over 6 years ago
    contheisland's Avatar

    Eyesight

    Loss

    He lost eyesight in April of 2012 and it has been a struggle for both of us! That's why I'm looking for a caregiver support group h...

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    0 Comments
  6. over 6 years ago
    contheisland's Avatar

    Proton Therapy

    Radiation

    Patient is my husband and he is under Hospice Care and I need some support groups for me.

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    over 6 years ago
    Joeysmommy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    His first dose of chemo was a combination of two kinds of chemotherapy medication. It was on an out-patient basis and he sat in that...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    over 6 years ago
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    over 6 years ago
    Joeysmommy's Avatar

    Surgery

    Procedure or Surgery

    On March 6th, 2010, my son underwent the surgery he had dreaded since he first heard the word "cancer". He was amputated above the k...

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    over 6 years ago
    Joeysmommy's Avatar

    Surgery

    Procedure or Surgery

    When the cancer came back, they were BB sized tumors in his knee. They were removed in an out-patient procedure and he was able to g...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    over 6 years ago
    Joeysmommy's Avatar

    Surgery

    Procedure or Surgery

    On June 30, 2010 he had a full knee, tibia and fibula transplant. This was his 22nd birthday. It was an eight hour surgery and his r...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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