• Suez
    • Experience with Multiple Myeloma
    almost 3 years ago
    Suez's Avatar

    Dexamethasone

    Drug or Chemo Therapy

    Dex is a friend. I take a weekly dose timed to the velcade injection and have 2+ really good days from it. I get things done and f...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Suez
    • Experience with Multiple Myeloma
    almost 3 years ago
    Suez's Avatar

    Bortezomib injection (Velcade)

    Drug or Chemo Therapy

    Injection site reactions are interesting to watch. Never the same in shape but always react by day 3 with an upraised sunburned lik...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Suez
    • Experience with Multiple Myeloma
    almost 3 years ago
    Suez's Avatar

    Lenalidomide (Revlimid)

    Drug or Chemo Therapy

    I was advised to take at night and that is very good advice. it puts me to sleep in about 15 minutes. Some minor side effects, but...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Kistej06
    • Experience with Multiple Myeloma
    almost 3 years ago
    Kistej06's Avatar

    Oral

    Clinical Trial

    Trial tested the efficacy of ninlaro.

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    0 Comments
    • Dhuesey
    • Experience with Multiple Myeloma
    almost 3 years ago
    Dhuesey's Avatar

    Cancer is back/Recurred

    Oh No

    Multiple Myeloma came back after STC in spinal fluid despite blood numbers showing still in remission

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    0 Comments
    • Glow
    • Experience with Multiple Myeloma
    almost 3 years ago
    Glow's Avatar

    Got the flu in Nov.2017

    Oh No

    Had no treatment for about 3 months, MM came back. I got a pleural effusion in L lung that had to be drained. It resolved very quick...

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    • Glow
    • Experience with Multiple Myeloma
    almost 3 years ago
    Glow's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was started on Kyprolis/Cytoxin/Dex. This was very harsh for me. It caused some cardiovascular side effects that are resolving sin...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Glow
    • Experience with Multiple Myeloma
    almost 3 years ago
    Glow's Avatar

    Fell on ice hidden under snow & broke leg.

    Loss

    Had to stop treatment for about 3 months, MM came back.

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    • Glow
    • Experience with Multiple Myeloma
    almost 3 years ago
    Glow's Avatar

    Dara/rev/dex

    Drug or Chemo Therapy

    The Daratumumab was the easiest treatment I did.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Glow
    • Experience with Multiple Myeloma
    almost 3 years ago
    Glow's Avatar

    Remission

    Celebration

    Only lasted about 19 months but in that time there was no detectable MM in my system.

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    • Glow
    • Experience with Multiple Myeloma
    almost 3 years ago
    Glow's Avatar

    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    Extreme fatigue. Eventually went away.

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    • Glow
    • Experience with Multiple Myeloma
    almost 3 years ago
    Glow's Avatar

    Started on Rev/Velcade injections/Dex twice a week. then had SCT.

    Clinical Trial

    The initial treatment wasn't too bad. The SCT had me so sick there were days I wished someone would just shoot me.

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    0 Comments
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