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- Suez
- Experience with Multiple Myeloma
Dexamethasone
Drug or Chemo Therapy
Dex is a friend. I take a weekly dose timed to the velcade injection and have 2+ really good days from it. I get things done and f...
Easy to Do: Strongly Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- Suez
- Experience with Multiple Myeloma
Bortezomib injection (Velcade)
Drug or Chemo Therapy
Injection site reactions are interesting to watch. Never the same in shape but always react by day 3 with an upraised sunburned lik...
Easy to Do: Agree Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Neutral/NA -
- Suez
- Experience with Multiple Myeloma
Lenalidomide (Revlimid)
Drug or Chemo Therapy
I was advised to take at night and that is very good advice. it puts me to sleep in about 15 minutes. Some minor side effects, but...
Easy to Do: Agree Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Agree -
- Kistej06
- Experience with Multiple Myeloma
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- Dhuesey
- Experience with Multiple Myeloma
Cancer is back/Recurred
Oh No
Multiple Myeloma came back after STC in spinal fluid despite blood numbers showing still in remission
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- Glow
- Experience with Multiple Myeloma
Got the flu in Nov.2017
Oh No
Had no treatment for about 3 months, MM came back. I got a pleural effusion in L lung that had to be drained. It resolved very quick...
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- Glow
- Experience with Multiple Myeloma
Chemotherapy
Drug or Chemo Therapy
I was started on Kyprolis/Cytoxin/Dex. This was very harsh for me. It caused some cardiovascular side effects that are resolving sin...
Easy to Do: Neutral/NA Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
- Glow
- Experience with Multiple Myeloma
Fell on ice hidden under snow & broke leg.
Loss
Had to stop treatment for about 3 months, MM came back.
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- Glow
- Experience with Multiple Myeloma
Dara/rev/dex
Drug or Chemo Therapy
The Daratumumab was the easiest treatment I did.
Easy to Do: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- Glow
- Experience with Multiple Myeloma
Remission
Celebration
Only lasted about 19 months but in that time there was no detectable MM in my system.
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- Glow
- Experience with Multiple Myeloma
Flu-like symptoms (fever, chills, sweats)
Side Effects
Extreme fatigue. Eventually went away.
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- Glow
- Experience with Multiple Myeloma
Started on Rev/Velcade injections/Dex twice a week. then had SCT.
Clinical Trial
The initial treatment wasn't too bad. The SCT had me so sick there were days I wished someone would just shoot me.