• CherylD
    • Experience with Multiple Myeloma
    over 2 years ago
    CherylD's Avatar

    bone marrow biopsy

    Procedure or Surgery

    I had bone marrow biopsy today, 10/13/17. The doctor and staff were great.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Panion
    • Experience with Multiple Myeloma
    over 2 years ago
    Panion's Avatar

    Remission

    Celebration

    I get an immunofixation lab test every two months. The last three I've had have all said that my monoclonal antibody (M spike) coul...

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    0 Comments
  3. over 2 years ago
    Prodjgal1's Avatar

    Oh No

    Just found out that I’m officially out of remission. Looking at starting treatment again.

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    1 Comment
    • Zzbro
    • Experience with Multiple Myeloma
    over 2 years ago
    Zzbro's Avatar

    Remission

    Celebration

    I am for now cancer free (or not detectable). total response. yay

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    0 Comments
  5. over 2 years ago
    MilfordMan's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    neuropathy edema fatigue anemia kidney failure

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    0 Comments
  6. over 2 years ago
    MilfordMan's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    RVD Aredia Iron infusions Procrit

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  7. over 2 years ago
    harborpets' Avatar

    Reviewed the ASCT procedure with the MM Dr.s about the benefits

    Decision Point

    After all treatments thus far, my numbers have come down to offer a VGR category, but not minimal as targeted. The stem cell proced...

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    0 Comments
  8. over 2 years ago
    harborpets' Avatar

    Some hand cramping on Dex days, and slight rash on 2 occasions of Velcade injections or Revlimid

    Side Effects

    I have been very fortunate in having minimal side effects intruding on my quality of life. Hope this continues with ongoing treatments

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    0 Comments
  9. over 2 years ago
    harborpets' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Protocol included Revlimed 25 mg 21days on, 7 off. Currently on 10 months. Velcade inj. weekly (7 of them and discontinued) and we...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • CherylD
    • Experience with Multiple Myeloma
    over 2 years ago
    CherylD's Avatar

    Normal Skeletal Survey Xray Scan

    Milestones

    My primary care physician called today and said my skeletal bone scan came back normal. YAY! No lytic or destructive lesions, Lat...

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    2 Comments
    • CherylD
    • Experience with Multiple Myeloma
    over 2 years ago
    CherylD's Avatar

    Consultation with Hematologist/Oncologist 9/29/17

    Decision Point

    Review of my med history, did more bloodwork (inhouse), ordered bone scan in which I had done at the hospital, ordered bone marrow b...

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    0 Comments
    • CherylD
    • Experience with Multiple Myeloma
    over 2 years ago
    CherylD's Avatar

    Changed Primary Care Physician

    Decision Point

    Made the decision to change my primary care physician. First visit today, 9/27/17. Visit went very well. Discussed my lab result of ...

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    2 Comments
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