• CherylD
    • Experience with Multiple Myeloma
    about 2 years ago
    CherylD's Avatar

    Neurological related to a form of hypothyroidism

    Other Care

    Consultation and review of past medical history for head tremors, memory and cognitive issues,extreme fatigue. Neurologist believes ...

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    0 Comments
    • CherylD
    • Experience with Multiple Myeloma
    about 2 years ago
    CherylD's Avatar

    Positive for Monoclonal Protein IgG Kappa

    Oh No

    I tested positive for monoclonal protein, IgG Kappa. I have had related signs and symptoms to Myeloma for some time (of course after...

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    10 Comments
    • Zzbro
    • Experience with Multiple Myeloma
    about 2 years ago
    Zzbro's Avatar

    stem cell transplant

    Procedure or Surgery

    harvest was horrible, transplant almost killed me. not fun

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    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. over 2 years ago
    Judyinthesouth's Avatar

    Kyprolis, dex, darzalex

    Drug or Chemo Therapy

    My hospital where I am treated is about an hour away. My part-time caregiver drives me and stays with me while I am treated. Treat...

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    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • mabel
    • Experience with Multiple Myeloma
    over 2 years ago
    mabel's Avatar

    Celebration

    Stem cell transplant was a success. Still on oral chemotherapy, but back at work, celebrating life

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    0 Comments
  2. over 2 years ago
    IrishEnglish's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Tried 3 chemos. Each were effective for 6-7 months. Am now in 8th month remission with Emplicity(Immunotherapy antibodies every 2 we...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Callejal
    • Experience with Multiple Myeloma
    over 2 years ago
    Callejal's Avatar

    Oh No

    After 3 years and 10 months of remission I now have new and active MM cells on my spine and hip. We're waiting for 3 months to re-...

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    0 Comments
    • Motacat
    • Experience with Multiple Myeloma
    over 2 years ago
    Motacat's Avatar

    Milestones

    Celebrating my 2nd re-birthday after stem cell transplant! In remission and taking it one day at a time!

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    1 Comment
  3. over 2 years ago
    warrior84's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    had to place on left side due to right clavicle fractured from disease

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    2 Comments
  4. over 2 years ago
    warrior84's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    i was originally diagnosed in 2009 with plasma cytoma they removed tumor off my sacrum spine did 8 weeks of radiation and saw my onc...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • feliz
    • Experience with Multiple Myeloma
    over 2 years ago
    feliz's Avatar

    ' Stem cell transplant

    Other Care

    I went to Seattle cancer care alliance for 3 months preparing for transplant, where I had gotten my whole family in a financial he'l...

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    0 Comments
    • feliz
    • Experience with Multiple Myeloma
    over 2 years ago
    feliz's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    My first port had to be placed on left side of chest i.e. to right collar bone fracture. I put off placing port till chemo blew out ...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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