1. over 4 years ago
    charrison1108's Avatar

    Surgery

    Procedure or Surgery

    As of Friday May 22, we found out that my husbands tumor was malignant and he is now permanently disabled. Our neurologist has him o...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
    • lostwife47
    • Experience with High-Grade Astrocyt...
    over 4 years ago
    lostwife47's Avatar

    Chemo brain

    Side Effects

    husband very confused, disorientated, quick to anger..

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    0 Comments
    • Suzy-q
    • Experience with Brain and Spinal Cord T...
    over 4 years ago
    Suzy-q's Avatar

    5 years!

    Milestones

    Hit the 5 year post-Diagnosis point, well now it's 5 1/2 years....No MRI or neurosurgeon follow up until Jan 2016, and no oncologist...

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    0 Comments
    • mhwenzel
    • Experience with High-Grade Astrocytom...
    over 4 years ago
    mhwenzel's Avatar

    Surgery

    Procedure or Surgery

    The craniotomy went well - but her energy level dropped dramatically immediately afterward. She also has confusion and forgetfulnes...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    2 Comments
    • inadaze
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
    inadaze's Avatar

    Lost loved one

    Loss

    I lost my mom 3 months and 1week to the day of diagnosis. Neurosurgeon said 3-9 months without treatment.12 months with treatment. I...

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    1 Comment
    • inadaze
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
    inadaze's Avatar

    Hospice

    Other Care

    Mom was placed in a nursing home. Short term memory is not good. Long term memory is good. She has issues with hallucinations and co...

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    0 Comments
    • inadaze
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
    inadaze's Avatar

    Cancer is back/Recurred

    Oh No

    8 days after surgery 2 new lesions. 16 days after surgery CT scans show lesions are now 2 new tumors!

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    0 Comments
    • inadaze
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
    inadaze's Avatar

    Surgery

    Procedure or Surgery

    Mom ended up losing use of her left arm and leg. It also induced Schizophrenia.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • dan55drew
    • Experience with High-Grade Astrocyto...
    over 4 years ago
    dan55drew's Avatar

    Finished treatment

    Celebration

    The wife got to ring the bell after the radiation treatment was done

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    0 Comments
    • dan55drew
    • Experience with High-Grade Astrocyto...
    over 4 years ago
    dan55drew's Avatar

    Biopsy

    Procedure or Surgery

    The biopsy went well, only problem was taking out staples, it hurt her quite a bit

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • dan55drew
    • Experience with High-Grade Astrocyto...
    over 4 years ago
    dan55drew's Avatar

    Hospitalization

    Other Care

    The wife was in the hospital for 20 days while trying to get to the point where she could go home

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    0 Comments
    • dan55drew
    • Experience with High-Grade Astrocyto...
    over 4 years ago
    dan55drew's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Taking the chemo drugs was easy for my wife, no side effects and no impact to daily life.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
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