• GENMAR47
    • Experience with Insulinoma, Endocrine...
    over 3 years ago
    GENMAR47's Avatar

    Had 2nd Endoscopic ultrasound with fine needle biopsy.

    Procedure or Surgery

    Doctor performed the EUS and attempted a biopsy. Tumor began bleeding, so he stopped and ended procedure. Samples sent to lab and sh...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • GENMAR47
    • Experience with Insulinoma, Endocrine...
    over 3 years ago
    GENMAR47's Avatar

    Oncology surgeon ordered an Endoscopic Ultrasound with a fine needle biopsy to identify insulinoma and check for cancer.

    Procedure or Surgery

    Doctor doing the EUS decided in his wisdom that neither pancreatic lesion was an insulinoma or cancerous, so he didn't do biopsy.

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • GENMAR47
    • Experience with Insulinoma, Endocrine...
    over 3 years ago
    GENMAR47's Avatar

    Hospitalized for 72 hour fast to check insulin and sugar levels. Results indicates an endocrine tumor, an insulnoma, which secretes excess insulin causing chronic severe low blood sugar.

    Procedure or Surgery

    A 72 hour fast is a controlled fast in a monitored setting. Basically, you are forcing your body to respond to no food for as long a...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • GENMAR47
    • Experience with Insulinoma, Endocrine...
    over 3 years ago
    GENMAR47's Avatar

    Chronic, severe hypoglycemia caused by Endocrine tumor- Isulinoma.

    Oh No

    Hypoglycemia(low blood sugar) has become life threatening in the last two years. Finally found a doctor who would listen. Started te...

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    0 Comments
    • Beeps
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    Beeps' Avatar

    Surgery

    Procedure or Surgery

    In Jan. '16 I had major surgery:. A partial liver resection to one lobe, tutu or removal to the other lobe, distal pancreatectomy, s...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • ewo1bn
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ewo1bn's Avatar

    Psychosocial

    Other Care

    These people think I am losing my mind.

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    1 Comment
    • ewo1bn
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ewo1bn's Avatar

    My mind/Sense of Humor

    Loss

    Don't like being me anymore

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    1 Comment
    • ewo1bn
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ewo1bn's Avatar

    Money

    Oh No

    Can't afford anything these days

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    0 Comments
    • ewo1bn
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ewo1bn's Avatar

    Chemo brain

    Side Effects

    It sucks

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    0 Comments
    • ewo1bn
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ewo1bn's Avatar

    Discontinue Treatment

    Decision Point

    Non-responsive to all treatment for more than 2 months...

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    0 Comments
    • able
    • Experience with Adenosquamous Carcinoma, ...
    over 3 years ago
    able's Avatar

    Surgery

    Procedure or Surgery

    Waiting for whipped surgery on April 14th.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Montrachet
    • Experience with Adenocarcinoma, Pan...
    over 3 years ago
    Montrachet's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Completed 12 cycles of Folfirinox; fatigue and peripheral neuropathy biggest issues

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
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