• ewo1bn
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ewo1bn's Avatar

    My mind/Sense of Humor

    Loss

    Don't like being me anymore

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    1 Comment
    • ewo1bn
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ewo1bn's Avatar

    Money

    Oh No

    Can't afford anything these days

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    0 Comments
    • ewo1bn
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ewo1bn's Avatar

    Chemo brain

    Side Effects

    It sucks

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    0 Comments
    • ewo1bn
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ewo1bn's Avatar

    Discontinue Treatment

    Decision Point

    Non-responsive to all treatment for more than 2 months...

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    0 Comments
    • able
    • Experience with Adenosquamous Carcinoma, ...
    over 3 years ago
    able's Avatar

    Surgery

    Procedure or Surgery

    Waiting for whipped surgery on April 14th.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Montrachet
    • Experience with Adenocarcinoma, Pan...
    over 3 years ago
    Montrachet's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Completed 12 cycles of Folfirinox; fatigue and peripheral neuropathy biggest issues

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • donnah6956
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    donnah6956's Avatar

    External radiation

    Radiation

    5 days of SBRT (Stereotactic Body Radiation Therapy)

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • donnah6956
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    donnah6956's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    9 months of oral chemotherapy CAPTEM-capecitibine and temodar

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • greatlife
    • Experience with Adenocarcinoma, Panc...
    over 3 years ago
    greatlife's Avatar

    Hair is back

    Celebration

    Hair is coming back, two months after folfirinox

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    0 Comments
    • greatlife
    • Experience with Adenocarcinoma, Panc...
    over 3 years ago
    greatlife's Avatar

    Cancer is shrinking

    Celebration

    The first regimen of eight cycles of Folfirinox worked and the tumors have shrunk significantly.

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    0 Comments
    • greatlife
    • Experience with Adenocarcinoma, Panc...
    over 3 years ago
    greatlife's Avatar

    Xeloda (0ral)

    Drug or Chemo Therapy

    Have only been on this regimen for five days...need to be two weeks on, one week off for ffour cycles. Will report more, if necessary

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • ceckersley
    • Experience with Endocrine Tumor (NET)
    over 3 years ago
    ceckersley's Avatar

    Cancer free for the first round!

    Celebration

    Had my second visit with oncologist. After all my testing which included PET/CAT scan and octreotide scan they say the surgical onco...

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    0 Comments
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