• suzqz
    • Experience with Clear Cell, Ovarian or F...
    about 1 month ago
    suzqz's Avatar

    Abdominal hysterectomy

    Procedure or Surgery

    I had stage 3 ovarian cancer that had wrapped around my colon and spread all around in the abdominal cavity. I had 3 rounds of chemo...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    Change medical care.

    Decision Point

    I decided in June 2019 to move from University of Michigan Medicine to I Stanford University Healthcare in Stanford, California. M...

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    Anniversary

    Celebration

    Having my deadly cancer controlled for 5 years in March 2019 was a day I thought I'd never see. I was literally planning my funeral...

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    Targeted therapy

    Drug or Chemo Therapy

    Crizontinib no longer worked for me after three years. I started Alectinib May 4, 2017. Although my response to treatment improved...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    External radiation

    Radiation

    From 11/22-12/07/16 a XRT 50 Gy to enlarging right infrahilar lymph node was discovered. It caused mass effect on multiple bronchi.

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    AT13387 (HSP90 inhibitor) × 2 cycles with concurrent Crizontinib.

    Clinical Trial

    I simply hated this trial that I participated in from May 15, 2015 to July 10, 2015. My lymphedema became worse, I became dehydrate...

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    Fatigue (tiredness)

    Side Effects

    Again, from the beginning of my diagnosis, fatigue is an ongoing problem that I work hard at managing on a regular basis.

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    Lymphedema

    Side Effects

    From the beginning lymphedema is a very challenging side effect for me.

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    Diarrhea

    Side Effects

    When taking the carbo/pem/bev intravenous chemotherapy and later a targeted therapy called Crizontinib, diarrhea was terrible for me.

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Immediately while hospitalized I had a carbo/pem/bev intravenous chemotherapy. Around the third cycle I started turning black and b...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    about 1 month ago
    pompeysh1a's Avatar

    Video assisted thoracic surgery

    Procedure or Surgery

    In short, I was a superwoman prior to surgery. Started going down by the head quickly after surgery and chemo.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • GKGKeri
    • Experience with Ovarian and Fallopian ...
    about 1 month ago
    GKGKeri's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Switching to another cocktail: Abraxane and Avastin. 4 more rounds. Day 1, Day 8, Day 15 and Day 28 (new Day 1)

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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