• Denise@LTC
    • Experience with Bile Duct (Cholangi...
    over 8 years ago
    Denise@LTC's Avatar

    Decision Point

    So Chemo wasn't working, Kim knew she needed this tumor out. Where to go? So she starts her search. Using out of pocket money, she s...

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    • Denise@LTC
    • Experience with Bile Duct (Cholangi...
    over 8 years ago
    Denise@LTC's Avatar

    Drug or Chemo Therapy

    While chemo wasn't working, the drs weren't giving her much hope. A timeline of 3-6 mons and this was so unacceptable. Friends made ...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Denise@LTC
    • Experience with Bile Duct (Cholangi...
    over 8 years ago
    Denise@LTC's Avatar

    Celebration

    Money was of course tight. Applying for disability would take months. The first check wouldn't be seen for six months. So what to do...

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    0 Comments
    • Denise@LTC
    • Experience with Bile Duct (Cholangi...
    over 8 years ago
    Denise@LTC's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Kim started Chemo right away.. she would be go every other week. We try to plan a little something to see her on her good week. But ...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Denise@LTC
    • Experience with Bile Duct (Cholangi...
    over 8 years ago
    Denise@LTC's Avatar

    Diagnosed

    Oh No

    In January 2010 One of my best friends was diagnosed with CC. This struck us all hard. My group of friends had recently reconnected ...

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    0 Comments
    • Karmie
    • Experience with Bile Duct (Cholangiocar...
    over 8 years ago
    Karmie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Being treated with Cisplatin(Platinol) & Gemcitabine(Gemzar) every 2 wks.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • cldunn5
    • Experience with Bile Duct (Cholangioca...
    over 8 years ago
    cldunn5's Avatar

    External radiation

    Radiation

    Radiation M-F for six weeks. Everyone very nice but it really takes its toll. Felt more fatigued every week. Did have a couple of...

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • cldunn5
    • Experience with Bile Duct (Cholangioca...
    over 8 years ago
    cldunn5's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had F5U for 6 weeks with radiation. Fatigue and nausea about the only side effects although this may be due to the radiation.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • cldunn5
    • Experience with Bile Duct (Cholangioca...
    over 8 years ago
    cldunn5's Avatar

    Surgery

    Procedure or Surgery

    First I went to a gastroenterologis who performed an endoscopic ultrasound with biopsy. This showed the tumor to be malignant. I t...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • cldunn5
    • Experience with Bile Duct (Cholangioca...
    over 8 years ago
    cldunn5's Avatar

    Diagnosed

    Oh No

    On September 21, 2011, I developed left sided pain and a low grade fever. I work for a group of colon and rectal surgeons and suspe...

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    0 Comments
    • MamaKat71
    • Experience with Bile Duct (Cholangio...
    about 1 month ago
    MamaKat71's Avatar

    Stents in both bile ducts every 3 months

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • MamaKat71
    • Experience with Bile Duct (Cholangio...
    about 1 month ago
    MamaKat71's Avatar

    Chemo brain

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
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