• Zzbro
    • Experience with Multiple Myeloma
    over 2 years ago
    Zzbro's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Had Zoledronic Acid IVPD. Took about 30 minutes through IV, no issues. Will be getting this once per month. got my second helping...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • cliff954
    • Experience with Multiple Myeloma
    over 2 years ago
    cliff954's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had a stem cell transplant May 2014 and currently in remission. Taking Revlimid 10mg daily as maintenance. I have no side effects, ...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
  1. over 2 years ago
    JazzQueen's Avatar

    Other

    Clinical Trial

    Numbers elevated 2 months in a row. Kicked off clinical trial. But it's not a bad thing! :-)

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    0 Comments
    • Zzbro
    • Experience with Multiple Myeloma
    over 2 years ago
    Zzbro's Avatar

    Aciclovir, also known as acyclovir, is an antiviral medication. It is primarily used for the treatment of herpes simplex virus infections, chickenpox, and shingles.

    Drug or Chemo Therapy

    Taken for 18 days now twice a day. easy no side effects

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • Zzbro
    • Experience with Multiple Myeloma
    over 2 years ago
    Zzbro's Avatar

    36 week - 3 drug treatment starts tomorrow. Bortezomib, lenalidomide, and dexamethasone

    Clinical Trial

    Treatment starts today, January 3rd 2017. Bortezomib (Velcade) shot/IV today followed by lenalidomide (Revlimid) Pill. Tomorrow de...

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    0 Comments
    • Zzbro
    • Experience with Multiple Myeloma
    over 2 years ago
    Zzbro's Avatar

    External radiation

    Radiation

    Had 5 Radiation treatments which reduced the pain on my spine. Minimum side effects almost felt like sunburn on the treatment locat...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Zzbro
    • Experience with Multiple Myeloma
    over 2 years ago
    Zzbro's Avatar

    Cancer has spread/Metastasized

    Oh No

    Have tumors on spine T7 main, and T6, secondary with a third on the left pelvis

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    0 Comments
  2. over 2 years ago
    JazzQueen's Avatar

    Chemo brain

    Side Effects

    PLAY VIDEO GAMES .. OR ANY OTHER GAMES .. REGULAR-LY :-)

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    0 Comments
  3. over 2 years ago
    JazzQueen's Avatar

    Chemo brain

    Side Effects

    "Why did I stand up?" "What was I trying to do?" "WHY AM I HOLDING THIS?" CRS syndrome is bad. LEARN HOW TO LAUGH AT YOURSELF IF ...

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    0 Comments
  4. over 2 years ago
    JazzQueen's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Just keep moving, stretching, strength training!

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. over 2 years ago
    JazzQueen's Avatar

    Phase 4

    Clinical Trial

    Monitored monthly. Developed neuropathy that almost disabled my ability to walk. But I beat it. Daily foot massages!!!!!!

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    0 Comments
  6. over 2 years ago
    JazzQueen's Avatar

    Diagnosis.

    Decision Point

    Doctors (so weany<3) hesitant to tell me of the diagnosis! Told them "I'm in the best place for a worst case". Spit it out & start...

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    0 Comments
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