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Infection
Side Effects
0 CommentsCaused weakness on my left side. Nocardia & Brain abscess required 4 brain surgeries and over a year of treatment
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Chemotherapy
Drug or Chemo Therapy
The Chemo was not that bad it was the infection I got after my last session that had mad life so difficult. Nocardia Brain abscess.
0 CommentsEasy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
External radiation
Radiation
Radiation to my face
0 CommentsPainless Experience: Strongly Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
Ibrutinib
Drug or Chemo Therapy
On a reduced dose but seeing a slow recovery to lab numbers
0 CommentsEasy to Do: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
Surgery
Procedure or Surgery
Has some skin cancer removed from shoulder
0 CommentsWent as Expected: Strongly Agree Minimal Recovery: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
Whether to accept high risk of stem cell transplant
Decision Point
1 CommentHigh risk was overwhelming and stem cell transplant is not an option for me. Insurance has declined to cover maintenance rituximab.
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Pain medicine
Drug or Chemo Therapy
Ask a nurse about "stacking" your pain meds. We learned of this after seond chemo round. You should NOT be in pain. If you are, ...
0 CommentsEasy to Do: Strongly Agree Minimal Side Effects: Strongly Agree Minimal Impact to Daily Life: Disagree -
Nausea medicine
Drug or Chemo Therapy
MAKE SURE you get a NUELASTA shot within 24 hours of infusion or you will be sicker than XXX. Her "nurse" "forgot" about it. We w...
0 CommentsEasy to Do: Agree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree -
Chemotherapy
Drug or Chemo Therapy
R-CHOP worked until Jun 2014. Then the mass began to get bigger. Next goal was stem cell transplant at City of Hope, Duarte, CA.
0 CommentsEasy to Do: Agree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree