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- Joshwa
- Experience with Follicular Lymphoma
To radiate or not to radiate.... December 2017
Decision Point
Staging still inconclusive with so many areas of PET CT lit up several weeks after Rituxan. Drs suggested radiotherapy because they ...
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- Joshwa
- Experience with Follicular Lymphoma
4x Rituxan
Drug or Chemo Therapy
October 2017 began series of 4x Rituxan infusions (once a week for four weeks). Drove myself there and back. Super sleepy from Benad...
Easy to Do: Agree Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Neutral/NA -
- Joshwa
- Experience with Follicular Lymphoma
Surgery
Procedure or Surgery
Second bone marrow biopsy. This time, CT guided. BTW, it sucked! But good results, sort of... Sarcoidosis confirmed, no lymphoma in ...
Went as Expected: Neutral/NA Minimal Recovery: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- Joshwa
- Experience with Follicular Lymphoma
Surgery
Procedure or Surgery
Bone marrow biopsy. Staging purposes... PET CT lit up areas in chest and bones, including pelvis. Previously suspected pulmonary sar...
Went as Expected: Disagree Minimal Recovery: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- Joshwa
- Experience with Follicular Lymphoma
Surgery
Procedure or Surgery
Biopsy July 30th, 2017. Excision of 2 enlarged nodes measuring about 3cm each.
Went as Expected: Agree Minimal Recovery: Neutral/NA Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- Joshwa
- Experience with Follicular Lymphoma
Just Diagnosed
Oh No
I found a lump in my neck on June 4th, 2017. The events that followed included prednisone, bloods, a CT scan after seeing a few diff...
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- Helen50
- Experience with Non-Hodgkin Lymphoma (...
Chemotherapy
Drug or Chemo Therapy
Active treatment of Bendamustine and Ritximab injection. Completed 5of 6 28 day cycles. A lot of minor side effects (itchy skin, dry...
Easy to Do: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- jomak
- Experience with Follicular Lymphoma
Remission
Celebration
I was notified after my scans in late November 2017 that I was in FULL REMISSION...tears of joy soon followed.
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- Ivey
- Experience with Non-Hodgkin Lymphoma (NHL)
Other Care
Had R-Epock 6 rounds 6 days in hospital each round. 132 Chemo treatments total. Now have had 2 Retuxin Infusions, need 2 yrs worth...
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- djholt
- Experience with Follicular Lymphoma
to get a second opion and the biopsys I had to decide if I wanted done.
Decision Point
Feeling very anxious and in denial of it alll
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- djholt
- Experience with Follicular Lymphoma
Just Diagnosed
Oh No
Such a overwhelming feelings of death and pain shocked out of my mind
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- Howie40
- Experience with B-Cell Lymphoma
Chemotherapy
Drug or Chemo Therapy
2009 - R-CHOP, 2016 - Bendamustine & Rituximab Now in remission but taking Revlamid 15mg, 21 days on, 7 days off.
Easy to Do: Agree Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree