1. over 2 years ago
    dlcmeighan's Avatar

    Infection

    Side Effects

    Caused weakness on my left side. Nocardia & Brain abscess required 4 brain surgeries and over a year of treatment

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    0 Comments
  2. over 2 years ago
    dlcmeighan's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The Chemo was not that bad it was the infection I got after my last session that had mad life so difficult. Nocardia Brain abscess.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • LisaDS
    • Experience with T-Cell Lymphoma
    over 2 years ago
    LisaDS's Avatar

    External radiation

    Radiation

    Radiation to my face

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • FayLynn
    • Experience with Chronic Lymphocytic Le...
    over 2 years ago
    FayLynn's Avatar

    Ibrutinib

    Drug or Chemo Therapy

    On a reduced dose but seeing a slow recovery to lab numbers

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • FayLynn
    • Experience with Chronic Lymphocytic Le...
    over 2 years ago
    FayLynn's Avatar

    Surgery

    Procedure or Surgery

    Has some skin cancer removed from shoulder

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. over 2 years ago
    barbbigred's Avatar

    Whether to accept high risk of stem cell transplant

    Decision Point

    High risk was overwhelming and stem cell transplant is not an option for me. Insurance has declined to cover maintenance rituximab.

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    1 Comment
    • Claire2018
    • Experience with Non-Hodgkin Lymphom...
    over 2 years ago
    Claire2018's Avatar

    Lost loved one

    Loss

    Rebecca was diagnosed Feb 2014 and passed on Dec 2014.

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    1 Comment
    • Claire2018
    • Experience with Non-Hodgkin Lymphom...
    over 2 years ago
    Claire2018's Avatar

    Home care

    Other Care

    I learned a lot and would love to answer any questions or give some tips that i wish i knew before she went through it. Ie making h...

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    1 Comment
    • Claire2018
    • Experience with Non-Hodgkin Lymphom...
    over 2 years ago
    • Claire2018
    • Experience with Non-Hodgkin Lymphom...
    over 2 years ago
    Claire2018's Avatar

    Pain medicine

    Drug or Chemo Therapy

    Ask a nurse about "stacking" your pain meds. We learned of this after seond chemo round. You should NOT be in pain. If you are, ...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Claire2018
    • Experience with Non-Hodgkin Lymphom...
    over 2 years ago
    Claire2018's Avatar

    Nausea medicine

    Drug or Chemo Therapy

    MAKE SURE you get a NUELASTA shot within 24 hours of infusion or you will be sicker than XXX. Her "nurse" "forgot" about it. We w...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Claire2018
    • Experience with Non-Hodgkin Lymphom...
    over 2 years ago
    Claire2018's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    R-CHOP worked until Jun 2014. Then the mass began to get bigger. Next goal was stem cell transplant at City of Hope, Duarte, CA.

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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