• donnah6956
    • Experience with Endocrine Tumor (NET)
    almost 4 years ago
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    External radiation

    Radiation

    5 days of SBRT (Stereotactic Body Radiation Therapy)

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • donnah6956
    • Experience with Endocrine Tumor (NET)
    almost 4 years ago
    donnah6956's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    9 months of oral chemotherapy CAPTEM-capecitibine and temodar

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • greatlife
    • Experience with Adenocarcinoma, Panc...
    almost 4 years ago
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    Hair is back

    Celebration

    Hair is coming back, two months after folfirinox

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    0 Comments
    • greatlife
    • Experience with Adenocarcinoma, Panc...
    almost 4 years ago
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    Cancer is shrinking

    Celebration

    The first regimen of eight cycles of Folfirinox worked and the tumors have shrunk significantly.

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    0 Comments
    • greatlife
    • Experience with Adenocarcinoma, Panc...
    almost 4 years ago
    greatlife's Avatar

    Xeloda (0ral)

    Drug or Chemo Therapy

    Have only been on this regimen for five days...need to be two weeks on, one week off for ffour cycles. Will report more, if necessary

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • ceckersley
    • Experience with Endocrine Tumor (NET)
    almost 4 years ago
    ceckersley's Avatar

    Cancer free for the first round!

    Celebration

    Had my second visit with oncologist. After all my testing which included PET/CAT scan and octreotide scan they say the surgical onco...

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    0 Comments
    • ceckersley
    • Experience with Endocrine Tumor (NET)
    almost 4 years ago
    ceckersley's Avatar

    Cancer has spread/Metastasized

    Oh No

    None of the numerous EUS/needle biopsies and blood tests showed cancer at all. They were all normal. I had no idea I had cancer nor ...

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    0 Comments
    • jayrcee
    • Experience with Pancreatic Cancer
    almost 4 years ago
    jayrcee's Avatar

    Hospitalization

    Other Care

    My initial round of chemo was toxic. My body strength was depleted to the extent that I developed a blood infection, low white cell ...

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    1 Comment
    • jan123
    • Experience with Pancreatic Cancer
    almost 4 years ago
    jan123's Avatar

    Lost loved one

    Loss

    sister died 6/11/14 brother died 13/02/15 both with pancreatic cancer

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    0 Comments
    • hilofoz
    • Experience with Endocrine Tumor (NET)
    about 4 years ago
    hilofoz's Avatar

    Surgery

    Procedure or Surgery

    Digestion and weight gain has to be monitored all the time, including foods, such as spice that may cause diarrhoea.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
    • deSmile
    • Experience with Adenocarcinoma, Pancre...
    about 4 years ago
    deSmile's Avatar

    Lost loved one

    Loss

    To all on What's Next. On October 26, 2015, my best friend and husband of 34 years made he next step in his life's journey. Surround...

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    1 Comment
  1. about 4 years ago
    ajvalleygurl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had the whipple procedure in May 2015.Doing great but still taking chemo every 2 weeks.Hope to end that soon.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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