-
- GENMAR47
- Experience with Insulinoma, Endocrine...
Oncology surgeon ordered an Endoscopic Ultrasound with a fine needle biopsy to identify insulinoma and check for cancer.
Procedure or Surgery
Doctor doing the EUS decided in his wisdom that neither pancreatic lesion was an insulinoma or cancerous, so he didn't do biopsy.
Went as Expected: Disagree Minimal Recovery: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Neutral/NA -
- GENMAR47
- Experience with Insulinoma, Endocrine...
Hospitalized for 72 hour fast to check insulin and sugar levels. Results indicates an endocrine tumor, an insulnoma, which secretes excess insulin causing chronic severe low blood sugar.
Procedure or Surgery
A 72 hour fast is a controlled fast in a monitored setting. Basically, you are forcing your body to respond to no food for as long a...
Went as Expected: Agree Minimal Recovery: Agree Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Disagree -
- GENMAR47
- Experience with Insulinoma, Endocrine...
Chronic, severe hypoglycemia caused by Endocrine tumor- Isulinoma.
Oh No
Hypoglycemia(low blood sugar) has become life threatening in the last two years. Finally found a doctor who would listen. Started te...
-
- Beeps
- Experience with Endocrine Tumor (NET)
Surgery
Procedure or Surgery
In Jan. '16 I had major surgery:. A partial liver resection to one lobe, tutu or removal to the other lobe, distal pancreatectomy, s...
Went as Expected: Neutral/NA Minimal Recovery: Disagree Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Disagree -
- ewo1bn
- Experience with Endocrine Tumor (NET)
-
- ewo1bn
- Experience with Endocrine Tumor (NET)
-
- ewo1bn
- Experience with Endocrine Tumor (NET)
-
- ewo1bn
- Experience with Endocrine Tumor (NET)
-
- ewo1bn
- Experience with Endocrine Tumor (NET)
Discontinue Treatment
Decision Point
Non-responsive to all treatment for more than 2 months...
-
- able
- Experience with Adenosquamous Carcinoma, ...
Surgery
Procedure or Surgery
Waiting for whipped surgery on April 14th.
Went as Expected: Not Specified Minimal Recovery: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- Montrachet
- Experience with Adenocarcinoma, Pan...
Chemotherapy
Drug or Chemo Therapy
Completed 12 cycles of Folfirinox; fatigue and peripheral neuropathy biggest issues
Easy to Do: Agree Minimal Side Effects: Neutral/NA Minimal Impact to Daily Life: Agree -
- donnah6956
- Experience with Endocrine Tumor (NET)
External radiation
Radiation
5 days of SBRT (Stereotactic Body Radiation Therapy)
Painless Experience: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree