• bdm0911
    • Experience with Chronic Lymphocytic Le...
    over 3 years ago
    bdm0911's Avatar

    Imbruvica (Ibrutinib)

    Drug or Chemo Therapy

    I began treatment about two and a half months ago. My WBC was 14 in March of 2015 and was up to 200 by January 2016. I was miserab...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Melly
    • Experience with Chronic Myeloid Leukemia...
    over 3 years ago
    Melly's Avatar

    Job

    Loss

    I can't work, and I feel I let down my family. No money coming in. My wife set up a go fund account. My family and friends have been...

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    0 Comments
    • Melly
    • Experience with Chronic Myeloid Leukemia...
    over 3 years ago
    Melly's Avatar

    Cancer is shrinking

    Celebration

    Well I have CML so my white blood cell count is shrinking. My doctor cut my chemo in half.

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    0 Comments
    • Melly
    • Experience with Chronic Myeloid Leukemia...
    over 3 years ago
    Melly's Avatar

    Chemo brain

    Side Effects

    I only get to pick one? Just keep checking them off.

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    0 Comments
    • Melly
    • Experience with Chronic Myeloid Leukemia...
    over 3 years ago
    Melly's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I take a pill form of chemo and it is much harder than I expected. My doctor lowered my dose and it is more tolerable

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Melly
    • Experience with Chronic Myeloid Leukemia...
    over 3 years ago
    Melly's Avatar

    bone marrow biopsy

    Procedure or Surgery

    Everyone said it was going to be painful. Even my Doctor. I expected the worst. Well, I was out of it the whole time did not feel a ...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • anniemk
    • Experience with Chronic Lymphocytic Le...
    over 3 years ago
    anniemk's Avatar

    phase 3 trial for Irutinib as firstline treatment for CLL

    Clinical Trial

    white count went from 435,000 to 8,000 today. My CLL is now 'inactive'.

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    0 Comments
    • AMLMom
    • Experience with Acute Myeloid Leukemia ...
    over 3 years ago
    AMLMom's Avatar

    Lost loved one

    Loss

    My son died February 23 after his 5th relapse of AML. He was never able to get well enough to move to transplant. AML is a beast. It...

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    0 Comments
    • Nskylstad
    • Experience with Acute Lymphocytic Le...
    over 3 years ago
    Nskylstad's Avatar

    Celebration

    Going on 1.5 years after treatment... Every day with my kids is a blessing and a wonder!

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    0 Comments
  1. over 3 years ago
    Bdsommers64's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    March 10, 2016 began outpatient cyterabine infusions March 7. Go in daily and it takes about an hour to administer the medicine. B...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  2. over 3 years ago
    Bdsommers64's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    7 x 3 Idarubicin plus Cetarabine ..this is day 15...chem ended on day 7. I think Brandi would honestly say the scariest part for bot...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 3 years ago
    MJT5's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Have nerve damage in fingertips and around face. Believe to be side effect of oral chemo that I've been on since 2008.

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    0 Comments
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