1. almost 3 years ago
    judyofthesouth's Avatar

    Outpatient @ hospital, monthly

    Other Care

    Taking monthly "dara" ivs. At home taking pomalyst (2mg) 21 days at a time, dexamethasone,4 mg (10 wkly), acyclovir, 400 mg (2 dail...

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    0 Comments
  2. almost 3 years ago
    Reddrgn39's Avatar

    Mood changes

    Side Effects

    Being unable to do the things I want makes me moody and grumpy

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    3 Comments
  3. almost 3 years ago
    Reddrgn39's Avatar

    Constipation

    Side Effects

    The drugs get me either constipated or the opposite

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    0 Comments
    • caldera
    • Experience with Multiple Myeloma
    almost 3 years ago
    caldera's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This is all very. New for my husband. So far chemotherapy hasnt been too bad however were getting ready to have a bine marrow transp...

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    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  4. almost 3 years ago
    Reddrgn39's Avatar

    Rash

    Side Effects

    Every once in awhile I get a rash along my hair line and scalp

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    0 Comments
  5. almost 3 years ago
    Reddrgn39's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The chemo takes soo much out of me...very exhausted most days

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. almost 3 years ago
    Reddrgn39's Avatar

    Work problems

    Oh No

    I was literally getting ready for work when I received a call urging me to go to the emergency room immediately. .

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    0 Comments
  7. almost 3 years ago
    azlibrarylady's Avatar

    Stem Cell Transplant

    Decision Point

    Also have amyloidosis. Given choice of 1 yr to live vs stem cell transplant with 25% mortality chance.

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    0 Comments
  8. almost 3 years ago
    gerrianneb's Avatar

    Stem Cell Transplant 2013

    Procedure or Surgery

    helped my sister through the transplant and lived with her for 2 months after to help with care

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  9. almost 3 years ago
    CentaurWill's Avatar

    Anniversary

    Celebration

    On the anniversary of my stem-cell transplant, my wife and some friends shared some ice cream and cake with me. I called it my "Reb...

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    0 Comments
  10. almost 3 years ago
    CentaurWill's Avatar

    Hair is back

    Celebration

    I lost it all (had my nurse cut it off, because it was falling out), in July. I noticed the slight return of my hair (head and bear...

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    0 Comments
  11. almost 3 years ago
    CentaurWill's Avatar

    Hair loss (alopecia)

    Side Effects

    It was all falling out.... head and beard. So, about two weeks after my stem-cell transplant, I asked my nurse to cut it all off. I...

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    0 Comments
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