• Zzbro
    • Experience with Multiple Myeloma
    almost 3 years ago
    Zzbro's Avatar

    Aciclovir, also known as acyclovir, is an antiviral medication. It is primarily used for the treatment of herpes simplex virus infections, chickenpox, and shingles.

    Drug or Chemo Therapy

    Taken for 18 days now twice a day. easy no side effects

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • Zzbro
    • Experience with Multiple Myeloma
    almost 3 years ago
    Zzbro's Avatar

    36 week - 3 drug treatment starts tomorrow. Bortezomib, lenalidomide, and dexamethasone

    Clinical Trial

    Treatment starts today, January 3rd 2017. Bortezomib (Velcade) shot/IV today followed by lenalidomide (Revlimid) Pill. Tomorrow de...

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    0 Comments
    • Zzbro
    • Experience with Multiple Myeloma
    almost 3 years ago
    Zzbro's Avatar

    External radiation

    Radiation

    Had 5 Radiation treatments which reduced the pain on my spine. Minimum side effects almost felt like sunburn on the treatment locat...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Zzbro
    • Experience with Multiple Myeloma
    almost 3 years ago
    Zzbro's Avatar

    Cancer has spread/Metastasized

    Oh No

    Have tumors on spine T7 main, and T6, secondary with a third on the left pelvis

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    0 Comments
  1. almost 3 years ago
    JazzQueen's Avatar

    Chemo brain

    Side Effects

    PLAY VIDEO GAMES .. OR ANY OTHER GAMES .. REGULAR-LY :-)

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    0 Comments
  2. almost 3 years ago
    JazzQueen's Avatar

    Chemo brain

    Side Effects

    "Why did I stand up?" "What was I trying to do?" "WHY AM I HOLDING THIS?" CRS syndrome is bad. LEARN HOW TO LAUGH AT YOURSELF IF ...

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    0 Comments
  3. almost 3 years ago
    JazzQueen's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Just keep moving, stretching, strength training!

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  4. almost 3 years ago
    JazzQueen's Avatar

    Phase 4

    Clinical Trial

    Monitored monthly. Developed neuropathy that almost disabled my ability to walk. But I beat it. Daily foot massages!!!!!!

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    0 Comments
  5. almost 3 years ago
    JazzQueen's Avatar

    Diagnosis.

    Decision Point

    Doctors (so weany<3) hesitant to tell me of the diagnosis! Told them "I'm in the best place for a worst case". Spit it out & start...

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    0 Comments
    • tallymcs
    • Experience with Multiple Myeloma
    about 3 years ago
    tallymcs' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo and stem cell transplant resulted in debilitating neuropothy

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Dgm
    • Experience with Multiple Myeloma
    about 3 years ago
    Dgm's Avatar

    Asymptomatic stage - do i seek a trial or wait until I must start treatment?

    Decision Point

    Upon the advice of my hematologist/oncologist and my MM specialist, I am trying to enjoy the days I have before I must begin treatme...

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    1 Comment
    • Colours
    • Experience with Multiple Myeloma
    about 3 years ago
    Colours' Avatar

    Weight loss

    Side Effects

    v low sodium levels

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    0 Comments
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