• csorrell09
    • Experience with Synovial Sarcoma, A...
    over 6 years ago
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    No Evidence of Disease and still going!!!

    Celebration

    Every check up I have had at MD Anderson Cancer Center has never showed any evidence of disease! I stayed in college, and am current...

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    • csorrell09
    • Experience with Synovial Sarcoma, A...
    over 6 years ago
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    Problem with doctor

    Oh No

    The doctors who had me and their patient in the hospital in Missouri after the set back, told me they were talking with my doctor in...

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    • csorrell09
    • Experience with Synovial Sarcoma, A...
    over 6 years ago
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    After the 6+ hour surgery, after I went back home to Missouri, a physical therapist that came to my house had me do too much too soo .

    Oh No

    This separated my TRAM flap on the inside and cause me to get sick. My leg and stomach got red, swollen, and began to hurt so very m...

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    • csorrell09
    • Experience with Synovial Sarcoma, A...
    over 6 years ago
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    Surgery

    Procedure or Surgery

    The 6+ hour surgery I underwent took place at MD Anderson Cancer Center in Houston, Texas. It went quite well! No active cancer cell...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • csorrell09
    • Experience with Synovial Sarcoma, A...
    over 6 years ago
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    External radiation

    Radiation

    I was very fortunate with my Radiation treatments. Unfortunately, I did experience a lot of weight gain, and was exhausted all the t...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • csorrell09
    • Experience with Synovial Sarcoma, A...
    over 6 years ago
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    Surgery

    Procedure or Surgery

    The first surgery that took place in Missouri, was the procedure that the tumor spilled into my body as it was being removed. After ...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • csorrell09
    • Experience with Synovial Sarcoma, A...
    over 6 years ago
    csorrell09's Avatar

    During initial removal, tumor spilled inside my body.

    Oh No

    The surgeon didn't tell me it spilled, contaminating the whole tumor bed and muscle in my right hip. I found out from a different do...

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    • PattiJ
    • Experience with Fibrosarcoma, Adult Sof...
    over 6 years ago
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    Which oncologist to choose; whether to treat with radiation or not

    Decision Point

    First indications were that the tumor was encapsulated, probably benign. Then it was determined to be a low-grade sarcoma with clear...

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    • PattiJ
    • Experience with Fibrosarcoma, Adult Sof...
    over 6 years ago
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    Surgery

    Procedure or Surgery

    Thoracotomy to remove a mediasteinal mass

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    Went as Expected: Disagree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • mlzeroth
    • Experience with Sarcoma - Adult Soft ...
    over 6 years ago
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    Hand foot syndrome

    Side Effects

    I have experience tingling and slight pain in my hands and feet usually begins 4/5 days after last treatment

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    • mlzeroth
    • Experience with Sarcoma - Adult Soft ...
    over 6 years ago
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    Hair loss (alopecia)

    Side Effects

    My hair started to fall out about a week and half after my first chemo treatment then I noticed I have very little peach fuzz coming...

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    • mlzeroth
    • Experience with Sarcoma - Adult Soft ...
    over 6 years ago
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    Mouth sores

    Side Effects

    I have not had any open sores but my mouth will get very tender and overall sore usually 4 days after chemo

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