• Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
    Aly5hajad3's Avatar

    Radiation

    Got 3rd degree radiation burns and had to go to the Mersey burns unit

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
    Aly5hajad3's Avatar

    Surgery

    Procedure or Surgery

    Tumor & muscle removal

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
    Aly5hajad3's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Many different chemo's for both if my diagnoses. Each very strong and very difficult to cope with. LOTS of side effects and hair los...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • beccahrh
    • Experience with Sarcoma - Adult Soft ...
    over 5 years ago
    beccahrh's Avatar

    Remission

    Celebration

    This is the email I just received from my Dr with the results from my MRI I had last Saturday. "The MRI showed only post operativ...

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    0 Comments
    • Kariann95
    • Experience with Synovial Sarcoma, Ad...
    over 5 years ago
    Kariann95's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Worse experience!! In patient 24hr a day for 3 to 4 day's every 3 weeks for 6 rounds. But cancer was unable to be seen on scan after...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • beccahrh
    • Experience with Sarcoma - Adult Soft ...
    over 5 years ago
    beccahrh's Avatar

    Side Effects

    Struggling with the slow healing after surgery and radiation is taking its toll. see my blog, http://her-royal-highness-blog.blogspo...

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    0 Comments
    • beccahrh
    • Experience with Sarcoma - Adult Soft ...
    over 5 years ago
    beccahrh's Avatar

    Allergic reaction

    Side Effects

    I got hives, a staff infection in the wound, I walk with a limp, I have scars from the radiation burns, my thigh is swollen and my s...

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    0 Comments
    • beccahrh
    • Experience with Sarcoma - Adult Soft ...
    over 5 years ago
    beccahrh's Avatar

    External radiation

    Radiation

    This sucked so much! I had 6 weeks 5 days a week of radiation treatment. About half way through I started to blister the last week a...

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • beccahrh
    • Experience with Sarcoma - Adult Soft ...
    over 5 years ago
    beccahrh's Avatar

    Other

    Oh No

    The initial DX. It came out of the blue and then I had to wait a full month for surgery and to even confirm it was a cancer. The bio...

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    0 Comments
  1. over 5 years ago
    MargaretHWard's Avatar

    Lost loved one

    Loss

    Lost my son due to this type of Cancer! I know they have cures for Cancer! Why want they release them?

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    0 Comments
  2. over 5 years ago
    emilytaylor's Avatar

    Symptoms

    I am the patients Health Care Proxy and also a registered nurse.a biopsy and pet scan needs to be done ASAP. problem-patient's insur...

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    0 Comments
  3. over 5 years ago
    piscesluv143's Avatar

    Surgery

    Procedure or Surgery

    returned by next mri after month long surgery, turned into a pattern , every 3-4 months for 2 yrs

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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