• Barefoot
    • Experience with Adenocarcinoma, Esoph...
    over 1 year ago
  1. over 1 year ago
    chrismarler4's Avatar

    Internal radiation

    Radiation

    These treatments literally whipe’s you out. Astronomically increasing staff infection rates. I felt like I should have been a bubb...

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • JasmineG
    • Experience with Invasive, Squamous Ce...
    over 1 year ago
    JasmineG's Avatar

    5 years since diagnosis

    Milestones

    Cancer free, but will never swallow again. WORD OD ADVICE. no matter the pain, or taste. Keep,swallowing in order to keep those musc...

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    0 Comments
    • Susan50
    • Experience with Squamous Cell Carcinom...
    over 1 year ago
    Susan50's Avatar

    Operation not possible

    Decision Point

    Now I'm terminal so I need decide if I want Radiotherapy

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    3 Comments
    • mr114750
    • Experience with Lymphoma, Oral Cavity...
    over 1 year ago
    mr114750's Avatar

    Jaw bone damage (osteonecrosis)

    Side Effects

    My osteonecrosis is in my cervical spine. Very rare to have this type of side effect of radition.

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    0 Comments
    • mr114750
    • Experience with Lymphoma, Oral Cavity...
    over 1 year ago
    mr114750's Avatar

    External radiation

    Radiation

    This had to be the worst experience as my neck was burned and my throat was even worse, I could not eat and had to have a feeding tube

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    5 Comments
    • Lonnie1950
    • Experience with Head & Neck/Throat ...
    over 1 year ago
    Lonnie1950's Avatar

    Opdivo/immutherapy drug

    Drug or Chemo Therapy

    Only had one infusion. No side effects so far

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Lonnie1950
    • Experience with Head & Neck/Throat ...
    over 1 year ago
    Lonnie1950's Avatar

    Cancer is back/Recurred

    Oh No

    Intense chemo did not work. Put on Opdivo

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    0 Comments
    • Lonnie1950
    • Experience with Head & Neck/Throat ...
    over 1 year ago
    Lonnie1950's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Hospitalized 4 days with 3 types of chemo 24 hours a day. Did this once a month for three months

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Lonnie1950
    • Experience with Head & Neck/Throat ...
    over 1 year ago
    Lonnie1950's Avatar

    Cancer has spread/Metastasized

    Oh No

    Cancer came back in lymph nodes

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    0 Comments
    • mr114750
    • Experience with Lymphoma, Oral Cavity...
    over 1 year ago
    mr114750's Avatar

    Surgery

    Procedure or Surgery

    major throat and neck surgery

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Tannis
    • Experience with Head & Neck/Throat Cancer
    over 1 year ago
    Tannis' Avatar

    Just Diagnosed

    Oh No

    Doctor dropped the ball as I had a huge Mass in my mouth and it took six months and a P.A. to get me to a specialist

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    2 Comments
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