• Gabbymom04
    • Experience with Adenoid Cystic Carc...
    over 1 year ago
    Gabbymom04's Avatar

    External radiation

    Radiation

    Starting radiation August 8 2018.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Lonnie1950
    • Experience with Head & Neck/Throat ...
    over 1 year ago
    Lonnie1950's Avatar

    Surgery

    Procedure or Surgery

    He experienced a chyle leak from the surgery and had a drain tube. A fat free diet was prescribed.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Lonnie1950
    • Experience with Head & Neck/Throat ...
    over 1 year ago
    Lonnie1950's Avatar

    Just Diagnosed

    Oh No

    Thought he just had a lump on side of neck.

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    0 Comments
    • karinelsen
    • Experience with Nasal Cavity and Pa...
    over 1 year ago
    karinelsen's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Because the vagus nerve in my face was cut, new nerve growth causes intense pain. I had to also have a vein in my nostril cauterized...

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    0 Comments
    • karinelsen
    • Experience with Nasal Cavity and Pa...
    over 1 year ago
    karinelsen's Avatar

    External radiation

    Radiation

    I had 33 treatments of proton radiation at Loma linda University Medical Hospital.

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    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • karinelsen
    • Experience with Nasal Cavity and Pa...
    over 1 year ago
    karinelsen's Avatar

    Surgery

    Procedure or Surgery

    3 surgeries through my nostril. However cancer spread quickly and had to have a 4th emergency surgery where cancer reconstructive su...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • karinelsen
    • Experience with Nasal Cavity and Pa...
    over 1 year ago
    karinelsen's Avatar

    Just Diagnosed

    Oh No

    Just diagnosed with this rare cancer in my sinus cavity.

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    0 Comments
    • Elly36
    • Experience with Squamous Cell Carcinoma...
    over 1 year ago
    Elly36's Avatar

    Just Diagnosed

    Oh No

    The word Cancer

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    0 Comments
    • Nels1960
    • Experience with Squamous Cell Carcino...
    over 1 year ago
    Nels1960's Avatar

    Swallowing problems

    Side Effects

    It has been over 27 years since my surgery and treatments for cancer and I have been very lucky and have had no real problems until ...

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    0 Comments
  1. over 1 year ago
    Diannajohnson2's Avatar

    My mind/Sense of Humor

    Loss

    Feel I have had a loss of peace.

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    1 Comment
  2. over 1 year ago
    Diannajohnson2's Avatar

    Fear the worst or let it go

    Decision Point

    I don’t know for sure what they were doing to the back of my neck but I am hoping it doesn’t do anything.

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    0 Comments
  3. over 1 year ago
    Diannajohnson2's Avatar

    MRI clear in 2013

    Celebration

    Had an mri to the brain and everything came back clear.

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    0 Comments
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