1. over 4 years ago
    martyjean's Avatar

    Hair loss (alopecia)

    Side Effects

    I just lost my bottom lashes on my eye....not major by any means. Still having some vision loss....was told that is common

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    0 Comments
  2. over 4 years ago
    martyjean's Avatar

    External radiation

    Radiation

    Was an experience going for proton beam therapy. Helped to know it was zapping the tumor

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. over 4 years ago
    martyjean's Avatar

    Surgery

    Procedure or Surgery

    Had surgery to put markers in for proton beam radiation.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. over 4 years ago
    martyjean's Avatar

    Relationship issues

    Oh No

    Husband seems unable to handle diagnosis....lots of fights,,,minimal support

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    1 Comment
    • Nursesknow
    • Experience with Intraocular Melanom...
    over 4 years ago
    Nursesknow's Avatar

    Decision Point

    I got the oncologist to understand that in the scheme of things, aromitase inhibitors are not worth my right now. It is only evidenc...

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    0 Comments
    • Nursesknow
    • Experience with Intraocular Melanom...
    over 4 years ago
    Nursesknow's Avatar

    labs

    Celebration

    Liver enzymes are normal! MRI of liver scheduled for May 30!

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    0 Comments
    • Nursesknow
    • Experience with Intraocular Melanom...
    over 4 years ago
    Nursesknow's Avatar

    Internal radiation

    Radiation

    I had a radio-isoptope 125I put in my right eyeball and then I hung out in a room for 5 days. The good news is my sweet boyfriend at...

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Nursesknow
    • Experience with Intraocular Melanom...
    over 4 years ago
    Nursesknow's Avatar

    My Eyeball kept falling out of my head

    Side Effects

    OMG, it sounds like a country song, doesn't it. To understand why my eyeball kept falling out of my head, it's important to understa...

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    0 Comments
    • Nursesknow
    • Experience with Intraocular Melanom...
    over 4 years ago
    Nursesknow's Avatar

    Body part/function

    Loss

    My eye came out in December of 2010. This year is 5 years from the last recurrence. I don't have the eye anymore so the ocular oncol...

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    0 Comments
    • Nursesknow
    • Experience with Intraocular Melanom...
    over 4 years ago
    Nursesknow's Avatar

    Psychosocial

    Other Care

    I'm so worn out. Work is better, but dealing with my medical care is taking a toll on me. Two weeks ago, my oncologist prescribed a ...

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    0 Comments
    • Nursesknow
    • Experience with Intraocular Melanom...
    over 4 years ago
    Nursesknow's Avatar

    Treatment Options

    Decision Point

    I've had ocular melanoma with 2 recurrences, invasive lobular carcinoma, and a uterine something from the Tamoxifen. I'm worn out tr...

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    0 Comments
  5. about 5 years ago
    human@unity's Avatar

    Body part/function

    Loss

    no eyesight in one eye,

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    1 Comment
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