• Purdy
    • Experience with Bile Duct (Cholangiocarc...
    over 3 years ago
    Purdy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Gem/Cis combination not tolerated well. Three cycles requiring two blood transfusions. Some tumours have grown so considering othe...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Purdy
    • Experience with Bile Duct (Cholangiocarc...
    over 3 years ago
    Purdy's Avatar

    Cancer has spread/Metastasized

    Oh No

    Asymptomatic at diagnosis of stage IV cholangiocarcinoma with metastasis to liver, lung, bone and soft tissue.

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    0 Comments
    • Angejone
    • Experience with Bile Duct (Cholangioc...
    over 3 years ago
    Angejone's Avatar

    Cancer has spread/Metastasized

    Oh No

    Mum has bile duct cancer with a poor prognosis we were told last week that even palliative chemo will not be of any help to us at th...

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    0 Comments
  1. over 3 years ago
    JoannaPasko's Avatar

    Lost loved one

    Loss

    The love of my life passed away only 2 months after the diagnosis without any real chance to fight against The Dragon...

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    1 Comment
    • vlsg
    • Experience with Bile Duct (Cholangiocarci...
    over 3 years ago
    vlsg's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am about to start chemotherapy on 1/14/16. Looking for inspiration to ease my fears!

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • aedwards
    • Experience with Bile Duct (Cholangioc...
    almost 4 years ago
    aedwards' Avatar

    Lost loved one

    Loss

    My husband lost his battle on July 30, 2015, a 5 month battle. I wish I had know about MD Anderson hospital a few months ago. Unfo...

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    0 Comments
    • aedwards
    • Experience with Bile Duct (Cholangioc...
    almost 4 years ago
    aedwards' Avatar

    Cancer has spread/Metastasized

    Oh No

    It appears the cancer has spread everywhere. My husband has lost any desire to eat or drink. He has become very agitated and his i...

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    0 Comments
    • Boomer145
    • Experience with Distal (Extrahepatic...
    about 4 years ago
    Boomer145's Avatar

    Had a stent put in the bile duct to keep it open

    Procedure or Surgery

    Developed a strong pain just below the center rib cage which put me in the hospital for 5 days, a cat scan showed a gall stone in th...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • aedwards
    • Experience with Bile Duct (Cholangioc...
    about 4 years ago
    aedwards' Avatar

    Fatigue (tiredness)

    Side Effects

    Side affects my husband is having are extreme fatigue, loss of appetite and nausea. He vomits, but that's due to the bile blockage....

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    0 Comments
    • aedwards
    • Experience with Bile Duct (Cholangioc...
    about 4 years ago
    aedwards' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My husband started Gemcitabine and Cisplatin for Stage IV Bile Duct Cancer on April 30th. He has had 3 treatments (Two Thursdays on...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • Mimix3
    • Experience with Bile Duct (Cholangiocar...
    about 4 years ago
    Mimix3's Avatar

    Decision Point

    Going to have surgery

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    0 Comments
    • Mimix3
    • Experience with Bile Duct (Cholangiocar...
    about 4 years ago
    Mimix3's Avatar

    Work problems

    Oh No

    I was working and I turned jaundice . Had no idea why?

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    0 Comments
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