• Danfan714
    • Experience with Invasive, Squamous C...
    about 1 year ago
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    Anniversary

    Celebration

    8 years out from 1st diagnosis and surgeon says looks great.

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    1 Comment
    • GregP_WN
    • Experience with Squamous Cell Carcino...
    about 1 year ago
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    A needle biopsy to see how the initial base is for the tumor after the first injection of the trial drug.

    Procedure or Surgery

    I've had three needle biopsies throughout this 32 years of fighting cancer. The first two were painful but tolerable, this one was b...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • GregP_WN
    • Experience with Squamous Cell Carcino...
    about 1 year ago
    GregP_WN's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This was the third port I've had put in throughout the 32 years of dealing with cancer. The first one quit working after about 6 mon...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • GregP_WN
    • Experience with Squamous Cell Carcino...
    about 1 year ago
    GregP_WN's Avatar

    I started a clinical trial with Keytruda Combined with ADU-S100 to see how the added drug to Keytruda will help it work.

    Clinical Trial

    This is the trial that I am on: https://www.cancer.gov/about-cancer/treatment/clinical-trials/search/v?id=NCI-2019-04759

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    0 Comments
    • GregP_WN
    • Experience with Squamous Cell Carcino...
    about 1 year ago
    GregP_WN's Avatar

    Immunotherapy - Clinical Trial

    Drug or Chemo Therapy

    I started Keytruda immunotherapy today, and a clinical trial with a drug called ADU-S100 combination. The keytruda went in without a...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • ssp
    • Experience with Invasive, Squamous Cell Ca...
    over 1 year ago
    ssp's Avatar

    Rash

    Side Effects

    BAD BAD rash from the erbitux AND the mouth/neck 26 zaps of 2 gray each session. SUCKED!

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    0 Comments
    • ssp
    • Experience with Invasive, Squamous Cell Ca...
    over 1 year ago
    ssp's Avatar

    External radiation

    Radiation

    26 throat/neck radiation zaps of 2 gray each. TERRIBLE radiation burn around the neck. NO salvia. NO taste. SUCKED!

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • NGomez
    • Experience with Head & Neck/Throat Cancer
    over 1 year ago
    NGomez's Avatar

    Chemo/radiation

    Procedure or Surgery

    Reacted in top 5% to radiation high level pain

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • ssp
    • Experience with Invasive, Squamous Cell Ca...
    over 1 year ago
    ssp's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo rash on shoulders - neck - face - scalp TERRIBLE!!!! Other than that no issues ~

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • KevinB
    • Experience with Head & Neck/Throat Cancer
    over 1 year ago
    KevinB's Avatar

    Anniversary

    Celebration

    5 years post surgery / treatment was reason to be optimistic about future

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    0 Comments
    • KevinB
    • Experience with Head & Neck/Throat Cancer
    over 1 year ago
    KevinB's Avatar

    External radiation

    Radiation

    Am now strongly claustrophobic....ongiong dental compromise has been both costly , and now affects mastication of food

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    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Chris74
    • Experience with Laryngeal and Hypophar...
    over 1 year ago
    Chris74's Avatar

    Body part/function

    Loss

    Could no longer talk

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    0 Comments
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