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GVHD of gut
Oh No
1 CommentIn January of 2013, I had a GVHD episode for the intestines...I was in the hospital for 2 weeks, treating diarrhea, nausea, abd pain...
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Remission
Milestones
0 CommentsCurrently I am in remission, (Oct 2013) with no signs of disease present in bone marrow. I am 100% donor cells now...there are stil...
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Bone Marrow Transplant
Procedure or Surgery
in July 2012, transplant was done. It was the last hope for a cure, and the only cure! It was the most difficult time of my life, w...
0 CommentsWent as Expected: Agree Minimal Recovery: Strongly Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
Revlimed
Drug or Chemo Therapy
Afraid it is beginning to fail.....had 2 transfusions in 2 weeks.......Feels so tired and lousy most of the time. Numbers just won't...
0 CommentsEasy to Do: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
procrit, subcutaneously every week
Drug or Chemo Therapy
About middle of treatment in 2011, started procrit injections to raise hemoglobin levels. These were subcutaneous injections once a ...
2 CommentsEasy to Do: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
have Jak 2 mutation with the mds, and myeloproliferative disease as well.
Oh No
1 CommentWhen I was diagnosed in May 2010, bone marrow biopsy showed not only mds, but Jak 2 present, which is a rare complication assoc with...
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Chemotherapy with an IV infusion
Drug or Chemo Therapy
It also helps if you have a port inserted surgically, as it saves you many pokes for treatments or blood tests...I had chemotherapy ...
0 CommentsEasy to Do: Strongly Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Strongly Agree -
Thanksgiving prayer to God...
Celebration
0 CommentsCelebrating one year post bone marrow transplant and engraftment 100% of donor cells, with no signs of disease noted! Still have a ...
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Symptoms
0 Comments4 years after diagnosis I'm still doing well. Thankfully it has not progressed into Leukemia or needing Chemo / Bone Marrow Transplant
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For now, mild pain killers, mild sedatives, FABB tablets, mild sleeping pills.
Symptom Management
0 CommentsAppetite ranges from none on some days to very good on others. Blood counts are very low, barely maintaining adequate levels. Have t...
