• Aboueid
    • Experience with Bladder Cancer
    12 months ago
    Aboueid's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I just started chemo last week. The hardest part for me was the constipation and feeling slightly nauseous because of that

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  1. about 1 year ago
    jackkaufl's Avatar

    Procedure or Surgery

    Got my port so start chemo Monday. Will celebrate Thanksgiving with a huge plate of stuffing and gravy which breaks all my dietary r...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. about 1 year ago
    jackkaufl's Avatar

    Just Diagnosed

    Oh No

    First opinion with Florida Cancer Specialists, start with 3 to 4 months chemo, then operation to remove bladder and prostate. Gettin...

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    0 Comments
  3. about 1 year ago
    Kblakeave's Avatar

    CT scan

    Procedure or Surgery

    Ct scan of bladder and kidneys normal. Still gotta go for Cystoscopy

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    Went as Expected: Strongly Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Jon123
    • Experience with Bladder Cancer
    over 1 year ago
    Jon123's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Have been on different types of chemo and immunology drugs for 3 years

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. over 1 year ago
    MissouriGal13's Avatar

    Just Diagnosed

    Oh No

    We were in shock over my husband’s advanced bladder cancer diagnosis. He always lived such a healthy lifestyle.

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    0 Comments
    • Jay
    • Experience with Bladder Cancer
    over 1 year ago
    Jay's Avatar

    Surgery

    Procedure or Surgery

    After about two years of doing BCG treatments, I developed another tumor at the base of my ureter (the ureter is the tube that moves...

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. over 1 year ago
    Ihatecancer's Avatar

    Have to decide to begin chemo or not.

    Decision Point

    Post surgery 4 weeks. Have to decide on treatment going forward. 9

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    0 Comments
    • JCPV
    • Experience with Transitional Cell (Urothe...
    over 1 year ago
    JCPV's Avatar

    Anniversary

    Celebration

    Celebrating 3 years with no remission from the last treatment of Immunotherapy.

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    0 Comments
    • suelynn
    • Experience with Transitional Cell (Uro...
    over 1 year ago
    suelynn's Avatar

    Celebrate every day, as I am happy to be alive.

    Celebration

    I have changed my priorities and take every opportunity to be with family and friends and savor that time.

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    0 Comments
    • suelynn
    • Experience with Transitional Cell (Uro...
    over 1 year ago
    suelynn's Avatar

    Currently enrolled receiving enfortumab vedotin.

    Clinical Trial

    Once a week infusion for three weeks, off one week. Side effects are hair loss, skin burning/rash/blistering/peeling. Am now exper...

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    1 Comment
    • suelynn
    • Experience with Transitional Cell (Uro...
    over 1 year ago
    suelynn's Avatar

    Cancer is shrinking

    Celebration

    On continuing clinical trial regimen and lymph node cancer is shrinking.

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    0 Comments
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