• RobinW
    • Experience with Renal Cell Carcinoma
    12 months ago
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    External radiation

    Radiation

    More of an inconvenience than anything as I had to drive 45 mins to and from the treatment center for a 5-min procedure daily for 10...

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • RobinW
    • Experience with Renal Cell Carcinoma
    12 months ago
    RobinW's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Biggest side effect was fatigue initially. As time progresses bone and muscle pain started and increased over time.

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • RobinW
    • Experience with Renal Cell Carcinoma
    12 months ago
    RobinW's Avatar

    Cancer has spread/Metastasized

    Oh No

    15 years after initial diagnosis and left nephrectomy, metastasis to the top of the sternum was identified!

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    0 Comments
    • RobinW
    • Experience with Renal Cell Carcinoma
    12 months ago
    RobinW's Avatar

    Surgery

    Procedure or Surgery

    Recovery was long as this was an open radical left nephrectomy in 1999.

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • jiml
    • Experience with Clear Cell, Kidney Cancer
    over 1 year ago
    jiml's Avatar

    Surgery

    Procedure or Surgery

    11 months after the first metastasis, it metastasized into my thyroid gland. Removed the gland and now on thyroid hormone meds for ...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • jiml
    • Experience with Clear Cell, Kidney Cancer
    over 1 year ago
    jiml's Avatar

    Surgery

    Procedure or Surgery

    After 24 years, the renal cell cancer metastasized to my right lung which presented as heart attack like symptoms. Lower lobe of th...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • goyler
    • Experience with Kidney Cancer
    over 1 year ago
    goyler's Avatar

    Cancer is back/Recurred

    Oh No

    Dang, another lymph node in my chest shows the cancer is back. Now on Immunotherapy with Opdivo and Yervoy.

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    0 Comments
    • Bearymore
    • Experience with Transitional Cell Ca...
    over 1 year ago
    Bearymore's Avatar

    Surgery

    Procedure or Surgery

    Robotic laparascopic radical right nephrectomy.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  1. almost 2 years ago
    Teachertina's Avatar

    CT Results

    Celebration

    Yesterday’s scan results showed no evidence of disease at this time! That’s a Merry Christmas and Happy New Year for my whole family...

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    0 Comments
    • Bearymore
    • Experience with Transitional Cell Ca...
    almost 2 years ago
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    Cyto / Ureteroscopy

    Procedure or Surgery

    Outpatient diagnostic procedure to determine whether urothelial cell cancer or renal cell carcinoma

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    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. about 2 years ago
    theresarae's Avatar

    I really didn’t have a decision point.

    Decision Point

    The cryoablation worked. Now I just do follow ups. Amazing.

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    0 Comments
  3. about 2 years ago
    Harpersmemaw's Avatar

    Just Diagnosed

    Oh No

    Discovered after auto accident. I had a mass on kidney seen on CT.

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    2 Comments
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