• mebeam
    • Experience with Acute Lymphocytic Leuke...
    10 months ago
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    Heart problems/heart damage

    Side Effects

    Diagnosed with congestive heart failure

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    0 Comments
    • Gaucho
    • Experience with Leukemia
    10 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    Weak / weight loss / non repairable hole in mouth palate

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Resting
    • Experience with Chronic Lymphocytic Le...
    11 months ago
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    Monitoring

    Other Care

    I have blood tests done every 3 months. My WBC count goes up a little each time but I am still at stage zero. I have not told my chi...

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    • MiaMag5
    • Experience with Acute Myelomonocytic L...
    about 1 year ago
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    Cancer in my brain and a hole in the top of my head allowed my Dr to direct the chemo right into the reservoir that was implanted in my brain.

    Procedure or Surgery

    Blood clots from a bleed after the surgery led to a small stroke. I have a slight tremor in my right hand.

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • MiaMag5
    • Experience with Acute Myelomonocytic L...
    about 1 year ago
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    Chemotherapy

    Drug or Chemo Therapy

    Life affirming experience. Also, a shout out to my insurance co. They were part of my healing. Without Health Net picking up every ...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • MiaMag5
    • Experience with Acute Myelomonocytic L...
    about 1 year ago
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    UCLA Bone Marrow/Stem Cell Transplants

    Clinical Trial

    I had presented with Spinal Meningitis. I was blind and I couldn’t move my head. The pain was untenable. Leukemia was nowhere on my ...

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    • car092360
    • Experience with Acute Myeloid Leukem...
    about 1 year ago
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    Birthday

    Celebration

    Stem cell transplant on 4/9/19

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    • JRCruz
    • Experience with Acute Myeloid Leukemia ...
    about 1 year ago
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    Fertility

    Loss

    No longer able to make children

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    0 Comments
    • JRCruz
    • Experience with Acute Myeloid Leukemia ...
    about 1 year ago
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    Remission

    Celebration

    Since 2016 and like every stem cell recipient we look forward to our goal in Grafting which indicates you beat the illness (luekemia)

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    • JRCruz
    • Experience with Acute Myeloid Leukemia ...
    about 1 year ago
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    Bone thinning (osteoporosis)

    Side Effects

    Radiation made this possible and caused a big concern with my bone structure and density which can be also called Horis Lines create...

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    0 Comments
    • JRCruz
    • Experience with Acute Myeloid Leukemia ...
    about 1 year ago
    JRCruz's Avatar

    That it would be used to help others with issues that I was diagnose & all research that followed with it.

    Clinical Trial

    I was happy to be part of that clinical trial with the opportunity be able to help or save someones life.

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    0 Comments
    • JRCruz
    • Experience with Acute Myeloid Leukemia ...
    about 1 year ago
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    Money

    Oh No

    Finacailly this was hard & yes, oh no here we go again with dept issues !

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    0 Comments
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